Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
February 26, 2023
 · 
Be the first to react
A MyEpilepsyTeam Member

I took Dilantin for about 15 years. After that I was told if taken for 10 years I would get Osteoporosis. And I did. I had to take vitamin D3 pills every day for 2 years before I was okay again.

February 28, 2023
A MyEpilepsyTeam Member

Took Dilantin for over 30 years and it didn't affect me.

August 18, 2025
A MyEpilepsyTeam Member

I’ve tried different meds for my epilepsy since starting off back in the ‘80s. Including Dilantin, Tegretol and Tryleptal. But of all the pills I’ve tried, they’ve all had one similar side effect - I’m sexually disabled. I last less than 2 minutes before I ejaculate. It’d be nice if anybody could tell me anything I should try, ‘cuz I’m open to anything.

August 18, 2025
A MyEpilepsyTeam Member

I have taken Dilantin since I was 7 ... never stopped me! but I do now have osteoarthritis, and peripheral neuopathy.

March 4, 2023
A MyEpilepsyTeam Member

Yes, i have taken Dilantin and i did have the experience. But it seems like Dilantin isn't the only drug that can give you that experience. A lot of factors are involved such as how your type of seizures affects you and your body. And how does the medication treat you.

February 26, 2023

Related Questions

View All
A MyEpilepsyTeam Member asked a question 💭
Newcastle upon Tyne, UK