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A MyEpilepsyTeam Member asked a question 💭
Moscow, KS

Hi! I have mostly night generalized seizures but from time to time (1-2 times a year) they might also happen during a daytime. So I want to know what you think and how you behave guys: when applying for a new job at an office, do you tell your new employer of your diagnosis or prefer to keep it to yourself (like I did until now)?

October 28, 2022
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A MyEpilepsyTeam Member

I talked to my FA first, and she let me tell the team on my own terms, as needed when I felt comfortable with them. I have absence and myoclonic and the very rare tonic clonic but they all know I’m on meds and that I have a rescue med just in case and where it’s located. They are all supportive and make sure I take my meds on time, which isn’t always easy because I work in dialysis so I have patients that I’m sticking at times when my alarm goes off. They (including my FA) check on me to make sure I’m doing ok, and ask how long it’s been since my last episode. I know not all places are like that, but that has been my experience.

November 1, 2022
A MyEpilepsyTeam Member

Tanya, if you are going to tell your employer, then wait until you have been offered the job (not during your interview). It becomes a disability discrimination case if they change their minds after you have he job and tell them.

And make sure you give them full details about the form of your epileptic seizures besides what you have already said about frequency.

NOTE: In my case (Massachusetts General Hospital in 2000 and thus years before the patient's rights law, someone on the staff contacted my neurologist and found out all of the details of my seizures and limitations because of them.

So, I never had the option to hide it until after completing my trial period.

October 28, 2022
A MyEpilepsyTeam Member

You should always tell people working around you if you have a medical condition. I used to be ashamed and embarrassed by my epilepsy but you'd be surprised by people's attitudes nowadays. I've been called brave, determined, and amazing all because of my epilepsy.It's amazing how peoples attitudes have changed.

October 28, 2022
A MyEpilepsyTeam Member

I would always tell any future employer about my epilepsy. You have to think about what would happen if you did have a seizure at work. Would you cope? How would people react? What if you seriously hurt yourself? There are lots of things you have to consider. It's so much more than just "If I do tell him I might not get the job". If you don't there's far more to consider down the line and it's always sod's law you'll have a seizure. Sorry but that's my experience and my advice. I hope you take it. 🙃 x

October 28, 2022
A MyEpilepsyTeam Member

It's best if your boss/co-workers hear it from you. Randomly having a seizure at work could be scary and dangerous(for everyone), when you could've informed them of how to react in that situation so everyone would be safe.
If you're really worried... get to know them for about a month. Then drop the info on them when having a meeting or with a respectful letter.
Good luck.🤞

October 28, 2022

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