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Is There Hope?

Is There Hope?

It is very likely I had my first seizure 4 months ago, but I was out camping in Alaska and when I was found unconscious, people thought I had been attacked by a bear. Then I had a second seizure 10 days ago, witnessed by my partner, a focal seizure that progressed to a tonic/clonic. Both occurred in the early morning hours when I got up to pee. I have not had one since. I've an appointment with a neurologist this coming Monday and have become slightly depressed wondering what my life will be… read more

A MyEpilepsyTeam Member said:

I have many different medications. I've been on Lamictal 200 mg for years which seems to be the one for me. I still have seizures but there's usually a 3-4 year gap between them. I feel anyone diagnosed with epilepsy will still have seizures at some point throughout their life. With the right medications they are controlled better. Good luck to you!

posted 5 months ago
A MyEpilepsyTeam Member said:

I have had success with medicine and another treatment that I started in 2018 it's known as vagus nerve stimulation therapy or VNS therapy. I found out taking the medicines I'm taking plus when I started the VNS those together is what helped me so you have to remember there is hope. It just takes time for the doctors to find the right treatment for your specific epilepsy type and for you as a person because everybody reacts differently to the treatments that they have out there.

posted 5 months ago
A MyEpilepsyTeam Member said:

Your right, there is a lot of bad side effects in seizure meds. But keep in mind, many pharmaceutical Drugs advertised on tv and app ads also have bad side effects. I think they are worse than the epilepsy medications.

For me, I’ve been on the majority of anti seizure meds on the market. At least until a new comes. So far non of the have worked 100% for me.

Everyone with Epilepsy is different. Some of us are very well seizure controlled with the meds. A percentage of us are seizure free. Some of us are still trying to find a way to control our seizures. Our seizures are located in different areas of the brain , we have different types of Epilepsy, we all experience similar but also different things, living with Epilepsy.

Being diagnosed and live the life of Epilepsy won’t be easy. It will take awhile to understand your body’s reaction before, and after the seizures. Some people may only be able feel the body’s reaction after the coming out of the seizures. So you would have relearn you body is one way or another. You would want to learn and understand more about Epilepsy, whether it would be through us, your research and your Epileptologist or Neurologist. There is a lot of emotions that you may go through with Epilepsy. It will take awhile to also cope with this. There will also be many new facts of life with Epilepsy. Things like your seizures and types, taking meds, what will trigger your seizures and ect.

For good news, you’re not alone. We all support and help each other, there are many celebrities and historical ICON’s that also have Epilepsy. There are alternatives ways for living and get around with Epilepsy.

There is so many different directions to go, while explaining EPILEPSY. So I’ll stop here for now. The many of us from this site can also explain something able it. Some maybe different from what I said, some may explain similar things. I hope this help a little.

edited, originally posted 5 months ago
A MyEpilepsyTeam Member said:

I have had success with medicines. It's been over 5 & 1/2 years since my last seizure. There is hope. I Have had Epilepsy since I was 2 years old.
My worst time for seizures were puberty & "the change". Hormones were a big issue with me, also strobe lights & stress. I have had several long stretches without seizures. There is hope! It can take a while for drs to get your body under control but it is possible! You can live a normal life. I drive, raise a family, wor k part time, travel with my husband & hang out with friends. As scary as it can be,THere is hope!

posted 5 months ago
A MyEpilepsyTeam Member said:

Yes and yes. I know it can be overwhelming but there is hope. Neurologists should know what they're doing and have common treatments for certain types of seizures. As important as medication is lifestyle. If you are having the same type of seizure at the same time of day, there is probably cause. Sometimes it's lack of sleep, can be not eating enough, sometimes alcohol. Stress is also one of the main triggers. Changing my lifestyle with the three meds I'm on, I have been able to cut seizure activity from several per month to 2-3 per year. I had a little drowsiness when I started the regiment I'm on. But now there are no noticeable side-effects. Stay positive and stay strong!

posted 5 months ago
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