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Who Else Has Music As A Trigger And What Do You Do?
A MyEpilepsyTeam Member asked a question 💭

I love all sorts of music ranging from rock to ubeat hip hop. Ive noticed that the music i love is becoming more of a trigger for me. The music sometimes make my heart beat go up and can cause me to start shaking. Music has always been a way for me to cope and i dont wanna give it up my favorite songs.

posted October 31, 2021
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A MyEpilepsyTeam Member

For me, it's the VOLUME of the music. I love almost all types of music, but when it's amped up too loud, that can cause a seizure. When I was in college (30 years ago), I was the driver for my friends to go to concerts. They'd buy me a ticket, I'd drive, they'd get drunk and we'd all have a good time. They watched out for me.

posted November 1, 2021
A MyEpilepsyTeam Member

I actually watched a mystery diagnosis or diagnose me (it was one of them) on it it's called musicogenic epilepsy. The way the lady on the show beat it was with surgery. I don't know much about it otherwise but that is really Terrible because music is literally everywhere and it's even worse when you like it so I wish you luck!🤞

posted November 1, 2021 (edited)
A MyEpilepsyTeam Member

I feel the same way . For absolute sure . It’s like loud noises make me have anxiety and then stress and the stress causes the seizures

posted October 31, 2021
A MyEpilepsyTeam Member

In the early 70's Herbie Hancock released the album Head Hunters. From the album is a tune called Vein Melter which in those days the length of including auras, seizures and recovery would last close to 6 minutes of the 9 minutes song. I wouldn't recommend listening to the tune in the dark which i always did or if you are sensitive to noises that may trigger a seizure. I just recently heard the album for the first time since 1980's and no seizures.

posted October 31, 2021 (edited)
A MyEpilepsyTeam Member

I'm a 1980's hair band girl. I love all kinds of music but Metallica, Motley Crue and Ozzy are some of my favorites. I used to be able to crank it up. My husband is also a huge rock and roll fan and even some harder music. Since my seizure coma incident I haven't been able to listen to music loud anymore. I can still enjoy some of it but it can't be cranked up like I used to like it. More recently I find myself actually listening more to talk radio. My suggestion would be to try and listen to it with the volume a little lower and see if you can tolerate that better.

posted October 31, 2021

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