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A MyEpilepsyTeam Member asked a question 💭
Houston, TX

I don't see clobazam on the treatment list and I'd like to hear stories from those experienced. Has it helped?

August 30, 2021
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A MyEpilepsyTeam Member

I'm on 20 mg of clobazam. Since I started taking this dose it's helped a lot with my seizures with no known side effects. ( I also am using sodium to help with the seizures as well) but so far the clobazam seems to be doing what the carbazepine and keppra were having a hard time doing.

August 30, 2021
A MyEpilepsyTeam Member

I started taking onifi about 3 or 4' years ago when my neroligest also put me on birivact to go along with it and it's worked the best for me then any of the other anti-eptiliptic drugs I've taken along with the briviact although I been trying to lower my dosage of birivact but onifi has helped kinda lessen my sezuire activity and severity with no or less side effects than any other anti-eptiliptic drug and I don't feel as uptight or have as much anxiety as I've had about having a sezuire with the other ones . I am on 3 medications that all cause tiredness and sleepiness and drowsiness which make me easily fatigued but onifi kinda helps me with my love of cooking and meditation and working out and helps me to actually meant to do it as am usually out of it and just plain tired as ill have my son every other week and my weeks when my ex-wife has him am busy with other obligations and visits and doctor's appotments and this thing we call life.

September 1, 2021
A MyEpilepsyTeam Member

They help me with anxiety but now I’m giving them to take before bed to help me sleep. Sleep deprivation is one of my triggers.

August 30, 2021
A MyEpilepsyTeam Member

I started taking 10mg each night (I take 250g lamotrigine at night also) and after a week I just couldn’t survive a day without a couple of power naps and extra strong coffees. I was functioning but felt like I was on drowsy cold and flu meds! Now I take HALF a 10mg a night and have no troubles. I was just taking a bit more than I personally needed perhaps.

June 15, 2022
A MyEpilepsyTeam Member

Made me keyed really Sedated. Had me on so much.

June 3, 2022

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