Is Anyone Still Taking Dilantin (Phenyytoin) For Epilepsy? | MyEpilepsyTeam

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Is Anyone Still Taking Dilantin (Phenyytoin) For Epilepsy?
A MyEpilepsyTeam Member asked a question πŸ’­

I was on high doses of Dilantin for about 40 years. I was sure it was messing with my memory but the medical profession refused to admit it. Finally, doctors have come to acknowledge that long term use does, in fact, have negative effects on brain functioning and have taken me off it. I have tried a number of different drugs in the past ten years. Right now I am on Kepra and clobazam. The problem is, nothing is working as well as Dilantin did. I raised my family without having seizures and… read more

posted August 19, 2021
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A MyEpilepsyTeam Member

I'm 59 & have been taking Dilantin since I was 13. It's the only thing that has ever worked for me.

posted May 2, 2022
A MyEpilepsyTeam Member

Dilantin was so hard on my mouth

posted August 20, 2021
A MyEpilepsyTeam Member

Vimpat works pretty well for me

posted August 19, 2021
A MyEpilepsyTeam Member

I am no longer on Dilantin. It was crazy and messed me up so bad. I agree with you about the memory. I couldn't think straight on it.

posted August 19, 2021
A MyEpilepsyTeam Member

GOOD FOR YOU!!! I hope everything works out for you.

posted May 8, 2022

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