Connect with others who understand.

sign up log in
About MyEpilepsyTeam
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is Anyone Still Taking Dilantin (Phenyytoin) For Epilepsy?

Is Anyone Still Taking Dilantin (Phenyytoin) For Epilepsy?

I was on high doses of Dilantin for about 40 years. I was sure it was messing with my memory but the medical profession refused to admit it. Finally, doctors have come to acknowledge that long term use does, in fact, have negative effects on brain functioning and have taken me off it. I have tried a number of different drugs in the past ten years. Right now I am on Kepra and clobazam. The problem is, nothing is working as well as Dilantin did. I raised my family without having seizures and… read more

A MyEpilepsyTeam Member said:

GOOD FOR YOU!!! I hope everything works out for you.

posted about 2 months ago
A MyEpilepsyTeam Member said:

I'm 59 & have been taking Dilantin since I was 13. It's the only thing that has ever worked for me.

posted about 2 months ago
A MyEpilepsyTeam Member said:

Frankie I'd do the same-tell Dr. New drugs are just not helping as much Unless you were having a bad reaction but I'm sure you know there's no point in changing.

posted 10 months ago
A MyEpilepsyTeam Member said:

Dilantin was so hard on my mouth

posted 10 months ago
A MyEpilepsyTeam Member said:

Vimpat works pretty well for me

posted 10 months ago
Already a Member? Log in