Does All Epilepsy Meds Cause Sleep Trouble? | MyEpilepsyTeam

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Does All Epilepsy Meds Cause Sleep Trouble?
A MyEpilepsyTeam Member asked a question 💭

🤔 Trouble sleeping..thats me. It started way b4 2020 covid.. So thats Not It 🙂 any suggestions that are reasonable

LOL

posted July 30, 2021
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A MyEpilepsyTeam Member

I took CBD oil capsules for arthritis and got so groggy during the day I couldn't get anything done. If you can afford very low mg's of CBD OIL it may help you if you take it in evening so you can sleep. Check with your doctor. Colorado had legal marijuana and my Neurologist was OK with me using CBD oil.

posted August 13, 2021
A MyEpilepsyTeam Member

I only had trouble sleeping when I was taking Keppra, which also caused severe anxiety with me. My GP prescribed some Valium temporarily which worked a treat until I was put on a more suitable anticonvulsant.

posted August 4, 2021
A MyEpilepsyTeam Member

There are quite a few epilepsy medications that cause drowsiness. Phenobarbital, gapapentin, pregabalin, and, I'm sure there's more.
I've been suffering from really bad insomnia, for about 20 years. I was prescribed Paxil, even though I didn't have depression. I was having a lot of anxiety, and it was supposed to help it, as well as help me sleep better. I was on Tegretol for my seizures. It helped a little bit, but not much. Years later, I found out that my insomnia and anxiety, were due to menopause. I was in my early to mid 30's, so no doctor could have guessed that was what it was.
I what put on Zyrtec for allergies, and it made me very sleepy, during the day. Later I started taking 1/2 a pill of Unisom, which really helped for a long time. Later my neurologist prescribed Lorazepam 1mg, but I would take 1/2 a tablet only, this helped, quite a bit for a long time. Nowadays, a whole pill of Unisom, nor a whole tablet of Lorazepam, helps. Besides, Lorazepam is very addictive.
I do everything that is recommended, to get a good night's sleep. I exercise at least 1 1/2 hrs a day, I only have 2 cups of cups of coffee, when I get up, the rest of the day, I drink water, or decaffeinated soda.

posted August 1, 2021
A MyEpilepsyTeam Member

Melatonin works for some people. I am not one of those people. Medication side effects, stressors that you keep going over and over in your mind, eating late in the night, electronic devices right before turning the lights out, ambient noise such as traffic, sirens, etc. (even if it didn’t bother you before) or even it’s just become habit and mentally it’s hard to go to sleep earlier (even if you want to).

The way my brain works is by repetition. Sometimes that religion is bad in the sense that if something is thrown into my schedule that is not part of the routine and I have to get up earlier in the morning, I end up sleeping in the afternoon and staying up later at night. This results in my schedule getting pushed back and I end up sleeping later which then depresses me because I don’t have the time in the day to do what I wanted so depression kicks in because things aren’t getting done. That causes me to to stress on things. Ad infinitum

And it’s tough to break…especially if you’re living alone. Which is my situation. Still I work on it though.

My normal good night is sleeping be 2am. It has steadily been changing for a while now. My norm now is to go to bed between 7-8am and its still getting later. I figure eventually, I will be working my way around the clock back to 2am. It may take a while but it will get there. 🤣

I have stressed out about my sleep so bad that it has caused me headaches which are no good so I just roll with it. I change things if I can and if I can’t I just work with it the best I can.

Get cats. They’ll wake you up early in the morning…unless they’re like mine and then ta too much work for them to wake you up so they just go back to sleep. 😹

posted July 31, 2021
A MyEpilepsyTeam Member

My first neurologist (long before Alzheimer's stole the knowledge away from him) and the head of the sleep study section of the medical center explained to me that I need to prepare my brain to sleep. If I go to bed while still dwelling on subjects of the day that my brain is still working on solutions for, then I am not going to manage to get tired and thus fall asleep. He told me that I try for 15 minutes in bed to fall asleep (after doing meditation and everything else in preparation to aid sleep -- I likewise have a cd of calming sounds that I play all night long as I sleep). If I cannot fall asleep at that point, he said get out of bed and go read a book or something that does not involve electronics or tv (the light that hits the back of the eye from them will often keep people awake even longer) to take your mind off of all thoughts about anything except the story in the book. If you can do this (or achieve the brain to shutdown thinking with meditation), then you will find that you will be able to get to sleep. I take Melatonin every night to assist me too.

Unfortunately for me, meditation no longer works for me (no idea if it was because of some damage done during that 6 month period with sleep apnea and not tested and thus given a CPAP machine or something else entirely, but it simply does to get me calmed and tired any more). Lucky for me, the insomnia nights are few and far between now, but when I do have one, it is always a major challenge (now that I do not have meditation as an aid) to get my brain to shut down all of the problem solving thinking so that I can get tired and fall asleep.

posted July 31, 2021

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