Does Anyone Have Status Epilepsy That Can Tell Me Some Of Your Signs And What Triggers Yours. I | MyEpilepsyTeam

Connect with others who understand.

sign up Log in
Resources
About MyEpilepsyTeam
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Does Anyone Have Status Epilepsy That Can Tell Me Some Of Your Signs And What Triggers Yours. I
A MyEpilepsyTeam Member asked a question 💭

Mine have lasted for a day to 3 days. I get so tired I can barely walk. My eyes get so heavy until they start blinking. Most of the time I can hear but not move. Riding in a car makes me have one. Just wondering about someone else that has status epilepsy.

posted December 1, 2020
•
View reactions
A MyEpilepsyTeam Member

I also have mood changes from being a shy person to being a telling friends if I liked something or not. Now they get exactly what I think and it's very up & down the moods.

posted December 4, 2020
A MyEpilepsyTeam Member

I have Epilepticus and when I go to.hospital they keep me in about 10 days and takes me hours to come around. They said to my daughter that I had a cup of coffee but don't remember nothing at all even Neurologist came to see me he said but I was still out of it. I don't know when I'm going to have a.seizure. Don't know a thing for about 6 hours.

posted December 4, 2020
A MyEpilepsyTeam Member

So even though mine last a long time, I don’t go to an emergency room or nothing. I guess I don’t understand why because I just go in and out most of the time for a day. I do sometimes have some jerking and after I come out of them, I’m very tired and don’t want to do anything. I don’t know what they could do. I have medicine that I take once I loose my energy and sometimes it helps and other times it doesn’t.
I have been reading up on status epilepsy some and understanding it a little bit
More. I know it’s not good to have the seizures that long but I don’t understand how they could help. I have learned it’s better just to lay down, close my eyes and just go through it. sometimes I go completely go out and others times I go in and out but I don’t wear myself out as much by trying to fight it.

posted December 3, 2020
A MyEpilepsyTeam Member

Yes I do Epilepticus. I don't know what triggers mine. O never know when their coming just come and the next time when o come around is hours later in hospital

posted December 2, 2020

Related content

View All
Seizures
A MyEpilepsyTeam Member asked a question 💭
Vns Therapy
A MyEpilepsyTeam Member asked a question 💭
Who Is Eligible For VNS?
A MyEpilepsyTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in