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I have nocturnal seizure. Some are myoclonus and some are larger. Sometimes I am aware, focal/myoclonic but very often I am not during the bigger seizures. My husband is often awakened from my erratic breathing but I manage to ‘sleep’ right through it. Does the erratic breathing put a person at a higher risk for sudden death?
As far as I’m aware having nocturnal does put the person at a slightly higher chance of SUDEP....as if we didn’t have enough to worry about already! Plus I read recently that doctors in Australia have researched and done studies on people who have nocturnal seizures that are at a greater risk to having obstructive sleep apnoea too which will cause erratic breathing/sleep disordered breathing. Hope this helps!
At the risk of sounding self-pitying I would like to speak a little bit of truth which many people with epilepsy might want to hear. Maybe not. Whatever... the truth is, I used to have many nocturnal tonic-clinic seizures,, sometimes I woke up on the floor after falling out my bed with blood all over my face from biting my mouth off. Sometimes I would sleep right through and not even know it even happened except I would be so physically wasted and mentally fatigued that I could barely get out of bed all day... that was in the “good old days” when a woman would sleep in the same bed with me.
When you start seeing a new person and that happens on the 3rd date, you can bet that you ain’t never going To see her again, no matter what she says....so I don’t and can’t and won’t have a girlfriend or any chance at a normal relationship. Like the vast majority of people with epilepsy. Your partner will say O it’s cool. I understand, but you know it’s never the same. You will shortly be alone Again. ... the point is, I don’t even know if I have nighttime gran mals anymore because there’s no one sleeping next to me to tell me... and like the vast majority of people with a seizure disorder, other people cannot be your girlfriend, boyfriend, wife and or husband, whatever your case may be. Because you have seizures and other “normal” humans cannot, understandably, relate. And they can’t be around us. They certainly can’t sleep with someone with epilepsy. So if you have someone in your life who you sleep with and are having any kind of loving relationship with, consider yourself very fortunate. And for the rest Of the epilepsy people like me, it’s time to be real. And get used to being alone. Because you always will be. Your going to so embarrassed by your epileptic seizures that you will be grateful to be left alone. Rather than have to go through the humiliation of being dumped one more time. It’s not your fault. It’s not her fault. It is what it is. Accept it and move forward. Alone. So get hard and stay hard
@A MyEpilepsyTeam Member: I apologize for offending you.
Have a great evening!
No. Not. I don’t know him at all. Leave me alone. Are you
Trying to make me feel better? Stop it. You. Stop.
@A MyEpilepsyTeam Member: I once read a book titled, 'Three Cups of Tea,' by Greg Mortenson. His sister, died from epilepsy.' Just curious if there's a connection to this family? Some forms of epilepsy are genetic.
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