I am meeting with my epilepsy team of doctors next month to go over my options. Ive been on medication for several years, but get simple patial seizures every couple of months. I think they may bring up a vns implant. Anyone have this procedure, and has it helped?
Thank u. I totally understand. Ive had to call an on -call doctor because of some of the meds im on, in order to get them refilled on the weekends, holidays etc. Im currently on vimpat, keppra and onfi. If i have a seiuzure i will take ativan. The last time i had one was a day that i didnt smoke marijuana. Almost seems as though marijuana has more medicinal uses and nobody wants to admit it.
I have one right now. Mine has helped. When I felt a seizure beginning taking the magnet and sliding it across where the VNS is implanted turns it on. You feel a pinch in the left side of Your neck-the strength of that can be changed so it does not hurt at all. The strength/feeling of the seizures I was having dropped when I used it.
I have not, sorry
I have a VNS inplant. Before VNS I was having about 5 seizures a week. It has reduced my seizures greatly. Im glad i got it done.
I've had my Vns since dec 2017. Best thing I ever did. Still have partials, (auras), but with "sparky", I can stop them from turning into grand mals. Weening off one of my meds! Yay!