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Does Anyone Have Focal Aware Seizures?

Does Anyone Have Focal Aware Seizures?

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member Petit mals are now called absence seizures and are a type of generalised seizure.

Generalised seizures occur when there is widespread seizure activity in the left and right hemispheres of the brain. The different types of generalised seizures are:

- absence seizures (was petit mal)
- tonic-clonic/convulsive seizures (was grand mal)
- atonic seizures (also known as drop attacks)
- clonic seizures
- tonic seizures
- myoclonic seizures

I used to have absence seizures until my medication controlled it. I have done some good ones though like pour coffee on myself. Luckily the coffee was cold.

I have Juvenile Myoclonic Epilepsy, Reflex Epilepsy (eg. photosensitivity) and some focal aware/auras (ie. deja vu, hands tingling, head feels foggy).

Focal or partial seizures occur when seizure activity is limited to a part of one brain hemisphere. It is broken into two types - focal seizure with retained awareness (simple partial) and focal seizure with a loss of awareness (complex partial).

Epilepsy is such a spectrum condition, with so many seizure types and syndromes, with the names for it changing too often. It makes it very confusing for conversations.

http://epilepsyontario.org/about-epilepsy/types...

http://epilepsyontario.org/about-epilepsy/types...

posted over 1 year ago
A MyEpilepsyTeam Member said:

Focal aware seizures (FAS) used to be called simple partial seizures.

FAS are sometimes called ‘warnings’ or ‘auras’ because, for some people, a FAS develops into another type of seizure. The FAS is then a warning that another seizure will happen.

For me, my focal aware seizures express themselves as tingling in my hands, deja vu, and a feeling in my head (it's like it is foggy in there or something). It just depends which lobe they are coming from in the brain (temporal, parietal, frontal and occipital).

https://www.epilepsysociety.org.uk/focal-aware-...

posted over 1 year ago
A MyEpilepsyTeam Member said:

I do. I was just diagnosed a week ago. My FAS do not transform into anything more than that (thankfully) but I have them a few times a day sometimes. Mine manifest as an episode of extreme dizziness, double vision to the point where I feel like my eyes are physically crossed, my head gets this “full” feeling where it feels like my head is about 3 times it’s size... those symptoms have been consistent for each one. However, I’ve also had episodes where I have those symptoms accompanied by tingling and loss of feeling in my fingers starting at the tips and a few times I was standing and couldn’t move my legs or feet and they felt like my legs weighed a ton and I was unable to pick up my feet.

posted over 1 year ago
A MyEpilepsyTeam Member said:

I have auras, absences and tonic clonic.

posted over 1 year ago
A MyEpilepsyTeam Member said:

I do have Focal seizures, but I never know when I’m seizuring

posted over 1 year ago
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