Does anyone feel undervalued with their life since they became ill? and how have you got through it?
I'm with Darryl and Randy.
I found a hobby.
I made my first miniature ship for a ship in a bottle. Took lots of research. Plans and methods (old and new). The ship is done. I need some ocean. Wife say she gonna buy the colored clay, I'm forbidden to make it from materials we already have. Still waiting. And waiting.
I was 12 when I was diagnosed with epilepsy, after a grand mal seizure. I suffered from complex partial seizures after that. I would have a blank stare, and would have an out of body experience, for about 40 seconds, and then be back to normal.
In my case, my seizure disorder made me stronger and more determined to live a normal, and most important, to have others treat me as a normal person.
I learned to value me, and see myself to be just as important as anybody else. I was determined to achieve all my dreams and goals, and set out to do so. As a result, I became a very self assured and confident person. I've always found that some people see my high self esteem, as arrogance, until they get to know me.
When i first became disabled i lost 75% of my friends because they did not know what to say or do bit now they have all apologised and are really great friends now
At times I feel less of myself but then I look at my son and realize just because I have an illness doesnt mean Im worthless, I have a son and Im a good mother thats all I gotta think about and stay strong.
Many people still treat me as a child and instead of explaining to me as an adult , they will talk down to me , like I’m a 4 yr old . Another thing they would do is overe explain something, when it’s something I’ve done many times. It’s very frustrating