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A MyEpilepsyTeam Member asked a question 💭
Cincinnati, OH

I'm scared her personality will change and of side effects. I'm searching for safer and more holistic alternatives. Doctors are really giving us zero answers and are diagnosing epilepsy due to 2 days of seizing. Any information is much appreciated!

April 27, 2018
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A MyEpilepsyTeam Member

Please get dosing instruction from a qualified CBD Doctor before giving your daughter CBD oil Also please make sure it is made from Cannabis not Hemp oil Lots of companies are selling it online but be careful about where you are getting it from. It wont hurt her but the dosing milligrams is very important.for it to stop the seizures

May 2, 2018
A MyEpilepsyTeam Member

my son was put on keppra, he is 13 years old. first 3 weeks he had some highs & lows, it was alarming because he wasn’t acting like himself. it took 3 weeks to stabilize & he is doing well. sorry to hear about your baby girl.

May 1, 2018
A MyEpilepsyTeam Member

There are more states now that can use CBD oil. The most well known form is Charlotte's Web, named after a little girl, Charlotte Figge with Davet Syndrome (a form of epilepsy). This is a form with very low THC. Some others may have a higher THC content, which you don't want. You may also be able to explore dietary changes like the Ketogenic diet, but right now the most important thing is to get the seizures stopped. From there you'll be able to find long term ways to control them.

April 28, 2018
A MyEpilepsyTeam Member

I was on it but you need to watch for for the mood swings and dehidration. I’m on Lamotrigine. Side affects never affected me. I’m also on Topomax, and Zonisamide. I’m starting to get side affects from taking these two together.

April 28, 2018
A MyEpilepsyTeam Member

Be on alert on her behavioral changes.

April 27, 2018

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