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Opinions On Fycompa?

Opinions On Fycompa?

My neurologist added Fycompa to my lamictal and vimpat. The lamictal and vimpat combo has worked pretty well for the most part, but I’ve had a few breakthroughs and serious insomnia. My neurologist said that lamictal can cause insomnia. I had no idea. I’ve been taking it for years, but I had also been taking medication to help me sleep up until a few months ago. I am nervous about starting Fycompa, but hopeful as well. He is going to ween me off lamictal completely over the next 6 weeks. Any… read more

A MyEpilepsyTeam Member said:

Fycompa is my #1 WORST seizure med. Not being dramatic, I have reasoning. Tbi in 2016 and they needed to stop the seizures so I tried 13 meds before we found one mix that works. One med was fycompa...I will say one thing -- it did stop the seizures completely, many didnt. However I took the liquid form bc it caused bruxism (teeth grinding 24/7), went to the ER 3 times because i got lock jaw, cracked 4 teeth, started walking in a hunch position which is also a side effect, lost 20+ lbs bc my teeth/jaw hurt that much. Gf of years gave me ultimatum, DAYS without speaking, I became an a°°hole. Depression and ideation and anxiety SKYROCKETED.
Stopped my seizures after I cracked my skull.... I'd rather seize than go on it again. Everyone is different of course, but idk... Just even my family protested when a Dr brought it up a couple months back.

posted over 4 years ago
A MyEpilepsyTeam Member said:

I’m on all three and the Fycompa helped with my sleeping issues...now I sleep the best I have in years. Still have the breakthrough seizures though.

posted over 4 years ago
A MyEpilepsyTeam Member said:

Also, I find sense of humor is key to success. Thank you so much for your input

posted over 4 years ago
A MyEpilepsyTeam Member said:

Many of the pills for seizures can give a person suicidal thoughts. They mention that so they won't get sued if someone does do that.

posted over 4 years ago
A MyEpilepsyTeam Member said:

One more question. My doc put me on ambien and I sleep 3 hours then wake up and I am dizzy from the Fycompa now. This is totally interfering with my job. I do not know what to do. I hate to take anything else but kind of at a loss. Antivert for dizziness? What on earth for insomnia? Good god... I feel like I’m 90 👵🏻

posted over 4 years ago
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