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Opinions On Fycompa?
A MyEpilepsyTeam Member asked a question 💭

My neurologist added Fycompa to my lamictal and vimpat. The lamictal and vimpat combo has worked pretty well for the most part, but I’ve had a few breakthroughs and serious insomnia. My neurologist said that lamictal can cause insomnia. I had no idea. I’ve been taking it for years, but I had also been taking medication to help me sleep up until a few months ago. I am nervous about starting Fycompa, but hopeful as well. He is going to ween me off lamictal completely over the next 6 weeks. Any… read more

posted January 22, 2018
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A MyEpilepsyTeam Member

Fycompa makes me so drowsy I fall asleep while driving. It also makes me very forgetful

posted April 2, 2023
A MyEpilepsyTeam Member

Fycompa is my #1 WORST seizure med. Not being dramatic, I have reasoning. Tbi in 2016 and they needed to stop the seizures so I tried 13 meds before we found one mix that works. One med was fycompa...I will say one thing -- it did stop the seizures completely, many didnt. However I took the liquid form bc it caused bruxism (teeth grinding 24/7), went to the ER 3 times because i got lock jaw, cracked 4 teeth, started walking in a hunch position which is also a side effect, lost 20+ lbs bc my teeth/jaw hurt that much. Gf of years gave me ultimatum, DAYS without speaking, I became an a°°hole. Depression and ideation and anxiety SKYROCKETED.
Stopped my seizures after I cracked my skull.... I'd rather seize than go on it again. Everyone is different of course, but idk... Just even my family protested when a Dr brought it up a couple months back.

posted January 25, 2018
A MyEpilepsyTeam Member

I’m on the max dose one Fycompa. My Dr. Told my wife and I, to pay attention to my abnormal emotions. If I start acting paranoid , suicidal thoughts, get angry easier, and ect. To let her ( my Dr. ) know .

So far I haven’t experienced nor been told, that I was acting out of norm.

posted November 10, 2022
A MyEpilepsyTeam Member

I’m on all three and the Fycompa helped with my sleeping issues...now I sleep the best I have in years. Still have the breakthrough seizures though.

posted January 23, 2018
A MyEpilepsyTeam Member

Also, I find sense of humor is key to success. Thank you so much for your input

posted January 23, 2018

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