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Restless Legs
A MyEpilepsyTeam Member asked a question 💭

Does any one suffer from very restless legs. It really drives me mad. I know it's strange but it feels like I want to stretch the bones right out of my body and I attempt todo this. I will bash my legs on befor lounge very! hard and fast. They will also jerk and I don't have control of stopping it. If I get up and walk that eases the feeling
Could it be medication I'm on lamotrgine and Lacosamide. I did overdose once on the lamictal once not accidentally when I told my neurologist about the… read more

posted October 28, 2017
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member that good about the lamotrigine maybe it some thing totally different that causing mine. If people are on pensions the meds only cost $6.40 until you reach a certain amount spent or a number of scripts put in I'm not sure but then it's all free. I'm not on pension so I pay whatever the script are and when I get to a certain level I will pay the $6. I don't have private insurance and it's not necessarily needed. The med for the restless legs is private not on PBS pharmaceuticals benefit and they are not registered or counted in the benefits So everyone has to pay for it. If you have insurance you can claim. Our medical system is very different to what you have over there. I don't pay for any Drs if I have scans in hospital I don't pay. If outside I pay the gap Medicare pays the rest. They are expensive. I don't want medical insurance the only difference is you can go to private hospital if you want and pay out so much money and it doesn't pay all the costs. Private hospital doesn't have ed so you are public anyway unless as you improve you can change it and it makes no difference at all. So I have to pay for meds but hospital stays all surgeries all meds in hospital are paid for. I know our government when Obama was president our government was talking to him and thinking about going that way. Of course we in Australia had a uproar and we won. I've had my rant😂 And we were only talking about restless leg syndrome

posted November 4, 2017
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I also take magnesium in high doses.Magnesium is supposed to work on heaps of different problems in most organs. I really have no idea why It was done during a long hospital stay in around may or June. I don't have cramps thank god. I had it a lot when I smoked. It seems to be most likely due to medication. Do you think What I was saying about blood test and level could be a reason? As I mentioned I didn't even know that levels were taken for lamictal

posted October 30, 2017
A MyEpilepsyTeam Member

Yes i have the same problem with legs. I think it is the meds. I take magnesium and it helps me. Less cramps in legs too.

posted October 29, 2017
A MyEpilepsyTeam Member

Hi @A MyEpilepsyTeam Member, Although the term, "over the counter" medication has been commonly used, all my life, with today's electronic equipment and cards, my medicare advantage insurance company sent my OTC card to buy non-prescribed medications, like aspirin, calcium, lutein, magnesium, etc. The reasons for them are to reduce possible problems as we grow older or side effects of prescribed medications, from 81mg aspirin to thin blood and reduce heart attack probability to 1000mg calcium in an effort to reduce chance of developing cirrhosis of the liver, similar to alcoholics.
Admittedly, some efforts to reduce seizures creates other problems, which expands the prescribed medications, depending on each of us. Finding whether a medication or interaction of different ones are creating a problem can take effort by medical professionals and patient. Some generic medication can be a problem. A few years ago, I was on the gabapentin, but a neurologist dropped the generic form and level of phenytoin took lower levels of medication and no gabapentin needed.
With the Grace of God, hope lies in you finding the answer desired.

posted November 12, 2017
A MyEpilepsyTeam Member

Chester when I see my neurologist I will mention it. What is OTC? We are certainly different. I'm not sure but the AED to me seem to have so many side affects and less tolerance than other types of meds. The problem is even though my seizures aren't totally controlled I really don't want to change medications it scares me as I'm so sensitive to a lot of meds, around 9 and probably still counting. I certainly do want to find out if this restlessness is medication induced. It drives bonkers

posted November 11, 2017

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