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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭
Philadelphia, PA

I'm in the process of having my surgery and I'm only two weeks from my date. Tonight at work, a co-worker made a comment where he said "I'm so tired I could drop here and seize" during a conversation about how tired he was from a busy shift at the Applebee's. I hadn't expected the comment and gotten upset from it and another co-worked noticed and said something to him about it. He responded with a comment, "why do I gotta watch what I say? I've had a seizure before I'm allowed to make fun of it… read more

September 9, 2017
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Answer Summary

Members shared a range of feelings about whether jokes about seizures and epilepsy are acceptable, sparked by a workplace incident two weeks... Read more

Members shared a range of feelings about whether jokes about seizures and epilepsy are acceptable, sparked by a workplace incident two weeks before someone's brain surgery. Many community members described a personal approach of letting comments go or taking them with a grain of salt, while others drew a clear line between lighthearted humor and outright rudeness. A recurring theme was that context and intent matter, but those living with epilepsy daily have earned the right to set their own boundaries around how their condition is discussed.

A MyEpilepsyTeam Member

I tink most people dont mean anyharm when they talk about epilepsyand most will do there best to help if somene has a seizure,at least in my opinion,trouble is always seems to be some person that has to crude and trow in some rude comments,.

September 14, 2017
A MyEpilepsyTeam Member

When it comes to making a joke about epilepsy & seizures it is just another part of the problem that people need to deal with. I take it with a grain of salt-and don't give a person the pleasure to see any reaction from me.

September 12, 2017
A MyEpilepsyTeam Member

I'm very different. I hope people don't take this with offence, I joke around all the time about my epilepsy. Quite often staff as well as myself will say what your co worker said or complain if a light keeps flickering that it's so annoying they are going to have seizures or management is going to cause us to have a seizure. It's probably because I'm a nurse and we always joke I have also joked with Drs, any medical staff. We deal with pts who have seizures all the time and are very serious /,concerned and professional when treating them. For me it's my way and other health workers cope but in general I just think it's just a saying with others. I believe their aim is definitely not to be offensive.

September 14, 2017
A MyEpilepsyTeam Member

I joke all the time about my seizures and Epilepsy.

I could be watching a tv show or movie and scene may come up where they hit their head very hard. I would joke that the actor or actress may start having seizures or Epilepsy.

September 12, 2017
A MyEpilepsyTeam Member

I'd probably go "epilepsy is not a joke" and walk away. You could make a bigger deal out of it but I don't think the guy meant a big deal out of it. I think you have to take it case by case and I've only been dealing with it four years. It sounded soft to me.

September 11, 2017

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A MyEpilepsyTeam Member asked a question 💭
Rocky Point, NC

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