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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭
Santa Fe, NM

I have been having symptoms like this for as long as I can remember and I am wondering if it is epilepsy related, since no one seems to know what it is. One of the symptoms I get is my vision starts getting black from the peripheral vision and then closes all the way in so I black out. With this I also see what I call "stars". That to me is like someone set off 50 camera flashes and all I see is those flashes. It happens at different times there is no correlation to being hungry. One time I… read more

August 19, 2017
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A MyEpilepsyTeam Member

I've definitely seen flashing lights before but my auras are very sensory- de ja vu, tingling in hands, face, legs, metallic taste and burning smell, hearing voices, etc. everyone's auras are different

August 20, 2017
A MyEpilepsyTeam Member

I pretty much have the same aura as kaylee. Sometimes I also have the floor moveing as if it's a undulating motion even if it's concrete. Another I have is a serial episoids where people voices echo and it's not a real world or my face ( picture a heart pumping) very weird. Often I don't necessarily have seizure as far as I know. Maybe I'm Wrong

August 22, 2017
A MyEpilepsyTeam Member

The aura I get is a bad taste in my mouth and feel like something heavy is on me holding me down. This happens every time before a seizure takes place.

August 25, 2017
A MyEpilepsyTeam Member

Auras are technically partial seizures. I know exactly if I'll end up in status epileptus because I'll have auras leading up to the grandmal- over a span of 2 or 3 days. And they worsen the more I have them. So probably at my worse easily 20-30 partials before the complex partials, abcenses, atonic, and finally grandmal. lol I call it the "big finale" haha not sure if this makes sense but thank goodness I know before they happen. I couldn't imagine not having a warning

August 22, 2017
A MyEpilepsyTeam Member

Before my complex partials I get vertigo, hallucinate, and feel like I'm stuck in a horrible nightmare. This sometimes goes on for up to a half hour. The actual seizure(hands and legs shake, eyes flutter, left eye drifts to the right)lasts between 1-3 mins. Sometimes I mumble during the actual 'seizure' part, but am totally unaware of anything and when i come to...i don't know where I'm at and very anxious and confused.
My grand mals hit without warning, except for a slight nose bleed.

August 20, 2017

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A MyEpilepsyTeam Member asked a question 💭
San Diego, CA