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A MyEpilepsyTeam Member asked a question 💭
Raynham, MA

Does anyone else experience migraines along with trying to deal with epilepsy. I get about 2 a month and they last a good 4 days. Pain relievers only take the edge off. My neurologist said you're twice as likely to develop migraines with epilepsy. I'm looking for suggestions on how people deal with the migraine.

March 25, 2017
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Answer Summary

Members overwhelmingly confirmed experiencing migraines alongside epilepsy, with many noting they happen before, during, or after seizures,... Read more

Members overwhelmingly confirmed experiencing migraines alongside epilepsy, with many noting they happen before, during, or after seizures, and that the two conditions often feed into each other. Several members shared practical relief strategies including Imitrex (sumatriptan), Topamax, Pizotifen, Botox injections, Aimovig shots, dark and quiet rooms, ice packs, and staying well hydrated. A recurring theme was that finding relief takes time and trial, but working closely with a neurologist to explore both preventative and acute treatment options made a meaningful difference for many.

A MyEpilepsyTeam Member

I get headaches nearly every day and take Amitryptiline every night as preventative for migraines. I have migraines after every seizure and I find Codeine and Ibruprofen help and a dark quiet room with cold flannel or ice pack. Hope that helps.

June 17, 2018
A MyEpilepsyTeam Member

I use to have migraines a lot and feel for you all who do. When I did, mine would last up to 3 days and taking something even my seizure meds. were difficult for me to do. I would be nauseated and get sick, would have to keep it very dark and quiet. Keeping an ice pack was the only thing that would help somewhat. But I was so thankful when that time was over. I still get head aches from time to time, not as severe. My thoughts and feelings are w/ you all dealing w/ those.

June 16, 2018
A MyEpilepsyTeam Member

I was hospitalized a week ago. I had flurry seizures. I couldn't see out my eyes because they were sensitive to light, and I wanted to throw up. I too, have terrific headaches but I thought I was going to die! I had these when I first had seizures. I take meds. For migraines but this medication didn't work.

March 28, 2017
A MyEpilepsyTeam Member

I have a constant headache which I now call my "normal headache". Then there's the "post seizure headaches" which are way worse.

March 27, 2017
A MyEpilepsyTeam Member

Yes I get them all the time . I use essential oils . it helps so much . I had a doctor that just threw meds at me because of my Epilepsy and I was sick of it . So I started using oils . I have seen a 160 change . I still take my needed meds though . the best brand to go with is Now essential oils or young living . the Lavender and Spearmint help my migraines . you just put I tiny bit on your temples or were the pain is and relieves it . just do your research on the oils first . some oils can cause seizures . also you can use a diffuser for your oils . My seizures are caused by stress or worry amongst other things so I use an app called calm to help relax and use my oils . I hope this helps ❤

March 25, 2017

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