I could only take Fycompa for maybe 2 months. It made me rage! I am so not that type of person. It amplified every negative thought and emotion for me and made me borderline suisidal. I couldn't walk straight or talk without slurring. It was like I was drunk. My epileptologist changed me to Briviact and I am feeling SO MUCH better. Be careful with Fycompa.

Have been on Fycompa since it came out, lots of potential and potential side effects with this one of which is intense aggression, throw in depression, mood swings, and the side effect that is rare, 1 out of 500 people may have suicidal thoughts or actions, that's 0.2% and is still far too many people dead or injured due to that med. Compulsive actions, mania, throw in constipation, diarrhea. It is one wicked bitch med but is the only drug that has controlled my E. Just went completely off of Banzel after a long taper, now I'm on the latest one: Briviact (brivaracetam) this one has worked out fine, one complaint, double vision and dizziness, guess that's 2 isn't it? No anger; no depression, mood swings in relation to my writing, no suicidal actions or ideation, I'm not exactly sure what they mean by compulsive actions, no constipation, no diarrhea. The problem with me is that I become drug resistant and it stops controlling unless they increase the dosage beyond what I consider acceptable. Doc Penovich has been my neurologist for 25 years, I trust her with my life. She's a bit protective of me and watches particularly for psych side effects from my medication. I'm on 8 in the morning and 12 at bed because that drug was literally knocking me on my ass. We went from 12 and 12 to 10 and 12 and finally the 8 and 12 in three weeks. The ass-knocking stopped, then I began tapering off of Banzel due to effects, that was one wild trip with some bumps and black eyes along the way. I've only been on Briviact for 1 month, 1 week. So, I haven't had much of a chance to find out, @A MyEpilepsyTeam Member right above me on the page has had success with Briviact and here's hoping more success for me.

Mentioned Users

A MyEpile...

Ugh...Fycompia and I didn't get along either. It was added on to my 3,000mg of Keppra a day because the doc is having a hard time finding a 2nd med to go along with Keppra as I'm still having seizures. Vimpat was a no go because of bad allergy to it
Anyway, Fycompia made me so dizzy and sick at the lower dose, and I told the doc about the inability to function, so by ALL means, let's DOUBLE the dosage! Honestly! I was a mess, and for the first time called him and said, " Please fix this! I can't take anymore!" I'm someone who usually tries to give things a chance, and stick the side effects out.
He did change me to another med, which is just as bad. Sick of this medication / side effect roller coaster.
Good luck. I hope they find a solution for your seizures and helpful meds. I know over here, it's not good!

Frustrated with your doctor you never one thing unless you only have one doctor in that whole area then you may be stuck but still go to Google ants County radiologist go to the county you live in and the state and people will either Rave about doctors and you can find a rating system in it how I find my new neurologist and he is fabulous I have been in and out of good doctors and doctors and sometimes more bad than good doctors but it's like anything else somebody who really like they move they change and then you have that problem all over again so keep it up and Google good doctors how can I write my Dr keep thinking of a way to move forward for yourself and build your own self esteem because that's really all it is with everybody majority of us anyway is our own self esteem we do want to feel like a regular human being goes to work gets up and everything else and I know that feeling I've been in both places I've worked 18 years and I've still sees tall 18 while I was working the advantages it was my father's business that's another idea if you really want something to do create your own business

Do you ever get to eat food?You must be too busy taking pills for that.When you are dealing with your neuro keep in mind you are the boss.He's working for you.Would you hire a mechanic to fix your car if couldn't or let him go and hire one that would?Talk with him. Ask about all of your alternatives other meds.Devices like the VNS or Brain pacemaker or procedures like surgery and neuro feedback for some of the things.If you're not happy with his work let him go and hire one you are happy with.Neurologists take care of all the nerves in the body.A neurologist with special interest and experience with the special nerve,the brain, is an epidemiologist .I think I'd have a better starting chance to be happy with his work if I knew he had a special interest in my problem and had some practice doing it But even then keep in mind 'mI not going to pay someone for work I'm not happy with. I'll find someone new until I am happy.