I've got complex partial seizures with identified abnormality in my temporal lobe. Seizures are focal so my neurologist said surgery is an option I should consider, but I'm pretty scared and not sure it is worth it. My seizures aren't very bad and I could still lead a mostly-normal life but I plan to become a doctor and with sleep deprivation being a major trigger for me it may prevent me… read more
Read my story.
Had a surgery last year and been seizure free :)
Useful info eh??? Heeheehee!!! Just kidding!!! Hope ur siezure surgery went well!!! As of having surgery is a definite option!!! If u know that surgery is ur last to the end of ur serizures then go for it!!! U may already have had it, by here is the the jist if it is if ur epilepsy is coming from top frontal lobe??? Then its great to have surgery!!! 70% of the average epileptic will do great!!! But like me they lost count at 150 per day!!! I had no option but to have the surgery done!!! I got it don't Sept 11th 2003!!! During the 6 hour surgery I was woken up during the surgery & asked to speak!!! They were testing where to cut & what to cut!!! So after a while I woke up to my divorced parents were both there!!! Both of yhrm??? SURPRISE!!! Wake up!!! I was like huh OMG!!! Ur here together!!! I couldn't believe it until I actually woke up!!! Well apparently the surgery was a success..I turned out to be 1 of the 70% who the surgery worked for!!!
Once my surgery was done I began to start my life ice again!!! Because until I had the surgery i was on sooooooooooo much meds I was a zombie!!! In such high doses of meds I slept all day & night...once I had the surgery I started my life at the beginning again but on 1/2 the Amount of meds I was on!!! I couldn't believe it!!! I was so happy!!! &grateful at how the surgery went well!!! So a few years Free of seizures I was having problem & I had a grand Mal...I had suffered getting amnesia!!! I completely forgot who I was the only way I knew anything was being told every thing... over & over I had siezures when they discovered I was having being turning in to being the 30% in which the surgery not work!!! So...I have epileptic & non epileptic siezures...they can't believe it...so here I am 2020 & I. Still taking meds & I dislike them so much my stupid doctor doesn't understand why I take these meds...huh...eh???heeheehee!!!
Any questions???just ask...may take time but will answer!!!
Have a great day!!!
I'm having mine this Saturday=) ready n waiting. Praying for no seizures after!!
I had a 3cm x 1cm piece of my right temporal lobe abated (laser ablation) last April. So far, some mild auras, but no seizures, which is really nice. I am still in the healing process, though and it takes time. I have had some emotional difficulties and am undergoing counseling from all the medical testing, constant doctor's appt.'s, medication changes, etc.
I had a right temporal Lobectomy December 2011 this was the first of the 5 surgeries due to some infection I went 2 years seizure free and started getting auras again and I have taken over 35 different epilepsy medications through out my life. The good thing is I'm not falling like I used to they are more of a confusion thing now:( but id do it again to not be falling on the floor car accidents before I don't drive now.