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Fear of people sneaking up on you during a fit when there is no one there.

April 10, 2016
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A MyEpilepsyTeam Member

I actually have that problem before I have a small or large seizure. I had it happen to me when I was with my fiance Wal-Mart and I thought some lady was talking to him about my son and everything went blurry and I started saying things I couldn't understand nor could anyone then I went into a full blown Grande mal

April 11, 2016
A MyEpilepsyTeam Member

I would have deja_vu all the time. I would be standing at the side of the river fishing with someone can't remember who the Pearson was. The smell and the taste of being outside. And I am standing in the kitchen all this time it would last for 4 minits and would have double vision as well. This went on for two years till my grand mall seizuer in 2013. I don't have them anymore.

April 10, 2016
A MyEpilepsyTeam Member

me no, head feel funny, mycolonic jerks--uncontrolled movements

April 10, 2016
A MyEpilepsyTeam Member

When I had a seizure after 27 years someone at work was trying to help me...I don't remember this part at all...evidently I started screaming and told him to get his hands off me. I think when we are having seizure we aren't aware of what's going on and we say or maybe do things that are not our character. Hopefully the people try to help us know this.

April 10, 2016
A MyEpilepsyTeam Member

I think it's because we feel vulnerable at that time. When I have a fit I want to be left alone x

April 10, 2016

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Southampton, UK