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A MyEpilepsyTeam Member asked a question 💭
Toronto, ON
January 29, 2016
 · 
Reactions
A MyEpilepsyTeam Member

I agree with Martyn. I even have to fight with ppl who are "supportive" ... you can't do this or that, life is hard enough, I get discouraged. I need encouragement, support, and comfort. Not negativity or critizim or pointless, endless pointless check pointing my faults. I may never climb mt. kilomanjaro but why not help support me? What is so wrong with love and kindness? I'm not sure how to deal, I just get frustrated and ignore and do it anyway, when I fail, I hear. I told you so... I left my family belief system to separate myself from thier dysfunction but I am not sure that I will be completely free from thier judgement, sometimes it perseption. Mine as well. They mean well.

January 29, 2016
A MyEpilepsyTeam Member

That is your choice not your MOM's or anybody else, I have had ep all my life got married we have 1 son age 35 with no problem at all. You having ep don't mean your kids will so if you want your baby from yourself then go for it , DON"T let someone else try and run your life when you can, its your body your choice, remember again YOUR CHOICE ,,, hope this help I am 15 yrs sz free to

February 1, 2016 (edited)
A MyEpilepsyTeam Member

What they want is not important, they will go on to live there lives as they choose and you should to, dont listen to any one but your self. Pick up the pieces and make it work for yourself. Had I listened to everyone else I never would have succeeded at the things I have now accomplished. Be Strong and stand for your self cause no one else will at the end of the day its your Life, take care

February 15, 2016
A MyEpilepsyTeam Member

My older daughter(44)has the gene and won't have kids but more a career choice that a matronly ne but my younger one has very severe tuberous schlerosis which they figured was salom seizure epilepsy. Having children can be a real hit and miss and not something to mess with.During a pregnancy you have to be very aware of your diet and what you drink.

February 2, 2016
A MyEpilepsyTeam Member

My mother was not too happy when I announced my pregnancy, but we got past it and she was there for me after my son was born...

February 1, 2016

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