All AED's have unpleasant side effects - from psychological to physical such as weight gain and weakness.

If there is no evidence that they are improving your epilepsy, would you follow the safe doctor's legal approach and stay on meds, or simply wean yourself off them and see if something bad happens in the future.

Prescribing AED's is basically like throwing a variety of things at a wall in the hope that one will stick. It's not much more advanced than that.

Which approach do you prefer?

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when i was a child (10-16) years old i was prescribed but when i left school the doctors changed my medication. why was this when mysoline was controlling my epilepsy. whilst on mysoline i was having 1 maybe 2 fits aweek but since they change my medication my fits have increased and i am unable to work

My daughter has migraines with aura and neuro just prescribed topomax and nurtec. I remember taking topomax a long time ago but didn’t work for me. Anyone have experience with it? Could use feedback and thanks! Any experience with propaNo lol?

Tryna is on 2000mg of zorontin and 4000mg of Keppra, my daughter also has stickler syndrome which is a connective tissue and joint disease which has stunted her growth. At the age of 17 she is 4ft 6. She is developmentally delayed with a mentality of about a 6 yr old. Tryna is our happy laughing and usually hyperactive child. Now she gets home and is very quiet and withdrawn, little or no smiles and usually no laughing. I have talked to her to see if something was bothering her and she just says… read more

I am almost 6 years seizure free. At my annual neurology appointment yesterday, my neurologist suggest that since I have been taking Dilantin for almost 30 years, that I should consider reducing the amount that I take until I am completely off Dilantin. I am and would still take Keppra. I am very nervous about getting off Dilantin and am wondering if anyone has had ill effects from taking Dilantin over a long period of time. Thank you for your feedback

My child 14 years is on maximum doses of 3 seizure medication- oxcarbazepine, clobazam and keppra .He is always very drowsy and irritable and depressed? What to do?

Hi everyone,.
Went to my Neuro yesterday. I will be stopping Vimpat 100mg BID and starting maybe Topamax.

Vimpat isn't controlling my seizures. I started it a few weeks ago and I already gained 10lbs and loosing my hair like crazy. Which sucks because I just lost my baby weight from pregnancy and started growing my hair back from breastfeeding

Anyway, what are your experiences with Topamaz? Going to be on 50mg BID

I am on Keppra and having more seizures lately but keppra is a good drug for me. but what is keppra xr for?

So my neurologist has had me taking Vitamin D, B12, and Folic Acid. She once mentioned taking prenatal vitamins (though I’m not planning on getting pregnant yet), and I kind of brushed it off. Then last time I saw her she said right that the end that I was taking prenatal vitamins, which kind of threw me off but I went with it. (She’s scary and I’m looking for a new neurologist - otherwise I would have asked about it). Is anyone else’s doctor having them take prenatal vitamins (not due to… read more

In the past, once in a great while I would feel a little jerk. Something like a reflex test. But more and more often, I'm going through these cycles. Especially when going to or waking up from sleep. Is something causing this?