Epilepsy

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Does anyone else not seem to be affected by alcohol?

Does anyone else not seem to be affected by alcohol?

I've had juvenile myoclonoic epilepsy for about 4 years now and have only had 2 grand mal seizures. I take 200 mg of lamotrigine daily, but was previously on 1250 mg of valproic acid. When I was first diagnosed, my neurologist said she'd only recommend having 2 drinks max. I'm in university right now and the temptation to drink is very high. I have been getting pretty drunk going out partying, including nights where i have about 13 drinks (I'm 200 lbs). I have… read more

A MyEpilepsyTeam Member said:

I will drink a little bit of alcohol ,occasionally, but I would dare try to drink to see how many I can drink before I seizures.

posted 6 months ago

Anyone experience hair loss on valproic acid?

Anyone experience hair loss on valproic acid?

I was taking valproic acid for 4 years and I noticed my hair starting to go (I'm only 21). My neurologist said it was a rare side effect of the drug. I've recently switched to lamotrigine to reverse these effects, but I'm just wondering if anyone else experienced the same thing with valproic acid, or if my hair is just falling out naturally.

A MyEpilepsyTeam Member said:

That was one of the medications my brother was taking for his Lennox-Gastaut Syndrome and his long hair completely fell out. They decided to take him… read more

posted 7 months ago

Please check this out

Please check this out

In the U.K. this lunch time on the news was a item on the ban of Sodium Valproate ([[treatment:Epilim):5886968c6b4dcc620a53edf9]]). Because of the dangers of it. They said go to G.P. if you are worried if you can look at the news on the internet I.T.N. news and it was on that.

A MyEpilepsyTeam Member said:

Hi @Marcome, I know I had to be pulled off one med as it could cause cancer many years ago - but I recently did develop cancerous cells in a number of… read more

posted about 1 year ago

Shock?

Shock?

Anyone ever have any kind of shock sensation go down their arms. Mine went down the right arm. I just started valproic acid 250 mg twice a day 2 weeks ago plus topamax 3 times a day 100 mg which i have been on for 8 yrs. Im not sure if it was a seizure or aura. But i think it may have been as it took me a few seconds to find the right words i wanted to say to my boyfriend to explain the experience. What do you think.

A MyEpilepsyTeam Member said:

I ve had this too in fact I lost 4 stone when on Topiramate I told the consultant neurosurgeon I didn't want to use phenytoin

posted 10 months ago

Changing from Lamotrigine &Epilim (Sod valporate) to Lamotrigine & Keppra

Changing from Lamotrigine &Epilim (Sod valporate) to Lamotrigine & Keppra

Hi I will be starting a medication switch over soon - adding Keppra to my Sodium Valporate/Lamotrigine combination and then will be weaned off sod val in order to prepare me for pregnancy as sodium valporate is harmful to a baby in pregnancy.

I’m wondering if anyone here has been through this/similar and what were your experiences?

I had my first grand mal at 13, and around 20 other grand mals up until I was 15. EEG normal. Since then… read more

A MyEpilepsyTeam Member said:

Also don’t let them put you on generic.

posted 11 months ago

Going off Tegretol and staying on Valprolic Acid

Going off Tegretol and staying on Valprolic Acid

Has anyone experienced this? I currently take both for my Generalized Tonic Clonic Epilepsy, and shortly i will be going off my tegretol. Last year when I did it I was on tegretol and Lamotrigine and about six weeks after my last dose of tegretol I had a very bad Tonic-Clonic seizure (lasted almost 5 minutes). Thank god my partner was here and I had to go to hospital. the next time was a month after and I gave myself a concussion and shoulder injury because it… read more

A MyEpilepsyTeam Member said:

I was on terra to let for years in combination with Valero I can acid. They worked but I was taken off, im on Lamotrigine now. The. Biggest draw back… read more

posted over 2 years ago

Are there interactions between cocodamol and AEDS?

Are there interactions between cocodamol and AEDS?

Hello I suffer with complex partial seizures,had brain surgery in 1993 and Vns fitted in 2014, not very successful and still having seizures. I've been prescribed co-codamol for pain relief,but worried there may be interactions with my AEDS as I'm very sensitive to drugs & tried all! At the moment on 700mg twice a day-sodium valproate (epilim chrono) 300mg twice a day tegretol retard,turmeric 500mg twice a day,vit B6 15mg X 1 and 10mg clobazam as and when… read more

A MyEpilepsyTeam Member said:

Best thing to do is to talk to your Dr. and they should know if they are ok to use together. A pharmacist might know to

posted about 2 years ago

Topamax

Topamax

I recently went to see my specialist nurse (she's not particularly good) she previously wrote to my GP telling him to gradually increasing my lamotrigine, I have 5mg working for the 200mg I was on before. She did not listen to me nor read my notes before I was on Sodium Valprate which I had previously (1200mg twice daily) and it did not work which she still wants to try, she's told me I am not having my absences anymore then said I am. She wrote down that I was having convulsants 1 a fortnight yet the… read more

A MyEpilepsyTeam Member said:

Second opt.

posted about 2 years ago

Symptoms

Symptoms

Hi Ian currently on 2000mg of sodium valproate a day I can sleep quite a lot.
It now appears work are trying to make me feel like I am not listening and my work standard has dropped. They want to send me back to OH.
Thanks

A MyEpilepsyTeam Member said:

What's your dose please??

posted over 2 years ago

Valporic Acid

Valporic Acid

What is you personal experience with Valporic Acid? I am interested in what you have actually experienced and not what MedMD or pharamcist says. The neuro wants to add this med to my cocktail and I am super Leary. Wondering if all the cautions and side effects listed are actually experienced or just the drug company covering their behinds.

A MyEpilepsyTeam Member said:

I want to also add that after taking the first round and getting a refill, the generic I was taking was changed by the pharmacy from amneal brand to… read more

posted over 2 years ago
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