I have epilepsy in both temporal lobes is there answer to a type of surgery for this condition?
I have medial temporal sclerosis on the right and something on the left temporal lobe and had a temporal resection and a neuropace (DBS) implant on the right. just like my VNS the doctor said it… read more
How does seizure surgery work?
Gutted to read this I suffer temporal lobe but it's too deep in the brain to be operated 😥 so had to settle for VNS x
I got the majority of the "important" questions answered that i asked my docs. I just forgot to ask, how long it takes for the chunk of skull to heal that they cut? Do they use screws to hold it together? Can you feel the fact your skull has been cut or that there are screws(if there is screws)? If anyone has has a resection, do you know a rough estimate what the answers would be? I know i can always ask the day of surgery for more exact answers, i just kinda want to go into knowing ahead of… read more
Research on a reputable site like Mayo, Cleveland, John's Hopkins clinics. Put your questions on Google and choose what those sites offer. This will help you ask better questions as well
Also Gigi… read more
Why all this worry bout seizure meds sides? Would some prefer seizures to happen? Diagnosed 50yrs ago bout 2-3 types of AEDs available. Now there are so many specifically for various seizure types which is even better. Seizure control is better now too. Yet others feel meds hurt more than help? Would never say if it was your heart having the problem. Advice from any source than your Dr. please take it from where it's coming - a non-medical opinion. Nice to exchange of ideas or opinions but… read more
I totally agree! I worked! I was on one medication! Now I am not working was on 3-4. Just moved and busy back to one medication, at high dose but it is helping back to hardly none at times. Breakthru… read more
i have had epilepsy since 4 and i was recently diagnosed with temporal lobe epilepsy and my epilepsy specialist said that surgery might be a good option but i also have other types of epilepsy so i dont know if my other types would be affected not only that but i have a traumatic brain injury and acute encophalophaly
I don’t blame You!
Since our memory is so bad from having seizures and taking meds. Having surgery will make memory worst or better?? I am so close to doing surgery now.
Sorry about the aftereffects of the surgery! Great job of explaining of not just what you had to relearn and how, but also slipping in a little brain at work education for us too!
I had surgery on my left temporal lobe in 1996 and had part of it removed and now im back to having seizures again about 5 years later to where they said its from the rest of my left temporal lobe what will it cause if i was to have surgery again i already have a bad memory. They say it may be part of my right temporal lobe also
I was 14 years seizure free after left temporal lobe surgery.. Seizures started again may 2017... There is no chance in hell that i would allow them to take more out of my skull. I have a horrible… read more
I want to know if the Temporal Lobe Resection would be something that I could be considering than the VNS, if so I just want advice from patients who have had it and let me know there experience.
I've had one and it has lessened my seizures and changed them.do what you think is right write down every question you have about it and ask doctors sometimes when we get into the meetings with… read more
Every neurologist I have seen tells me I need surgery to control my seizures. I have temporal lobe epilepsy that causes complex partial seizures. I've been through four different medications and still do not have control over the seizures.
I don't know if my condition is progressing or if the medication is causing me problems, but either way, I have noticed that I have forgotten a lot of things and my thought process is slower than it used to be. It's driving me nuts. I used to be the top of my… read more
I know the feeling....Except my neurologists over the years were not saying the surgery aspect. But I have been thru 9 medications now. I'm taking 2 medications now. But have dealt with 9 over the… read more