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I have epilepsy in both temporal lobes is there answer to a type of surgery for this condition?
I have medial temporal sclerosis on the right and something on the left temporal lobe and had a temporal resection and a neuropace (DBS) implant on the right. just like my VNS the doctor said it… read more
Mine were called Absence, now Partial Awareness. Where I live there is no Liability Insurance, so they call 911. I would not trust anyone to administer anything. I now wear a Lifeline button. I had a fall because I had not eaten due to a tooth being pulled, and was in the ER.
Mark, thank you.
How does seizure surgery work?
Gutted to read this I suffer temporal lobe but it's too deep in the brain to be operated 😥 so had to settle for VNS x
I had 2 right temporal lobe lobectomies, removing 13%dead brain tissue of the 18% damaged. Unable to remove all 18% because it was too close, making too risky to area of other dead brain tissue. Or it… read more
What are the chariteristics of temporal lobe seizures
I get these too for 25 years and thought i was having ptsd it was a relief to find out it was seizures and i wasnt crazy!!!
My doctor and team have decided the best next step for me would to have a intracranial grid electrode implantation eeg. Has anyone had the same procedure done? I have yet to decide on when I want to do this since I am pretty nervous. any advice would be appreciated
@A MyEpilepsyTeam Member, thank you for taking the time to explain. I have had a few 48-hour video EEGs, with no activity. I hope that this one works or it's on to step two
I'm sure that you must be… read more
Temporal Lobe Epilepsy
After an all-night focal impaired awareness seizure, (my first diagnosis, obtained by EEG), I woke up in the hospital. I worked in that very hospital in Respiratory Therapy back in the 80's, so I'm… read more
I had surgery on my left temporal lobe in 1996 and had part of it removed and now im back to having seizures again about 5 years later to where they said its from the rest of my left temporal lobe what will it cause if i was to have surgery again i already have a bad memory. They say it may be part of my right temporal lobe also
I was 14 years seizure free after left temporal lobe surgery.. Seizures started again may 2017... There is no chance in hell that i would allow them to take more out of my skull. I have a horrible… read more
I want to know if the Temporal Lobe Resection would be something that I could be considering than the VNS, if so I just want advice from patients who have had it and let me know there experience.
I've had one and it has lessened my seizures and changed them.do what you think is right write down every question you have about it and ask doctors sometimes when we get into the meetings with… read more