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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Sabril"

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Circadian And Circannual Impacts On Epilepsy:

Circadian And Circannual Impacts On Epilepsy:

A MyEpilepsyTeam Member said:

There is an old statement "Never sleep with your head pointing North", this comes from the concept of magnetic pull and how it affects the body.

Storms and atmospheric pressures can also cause… read more

posted 3 months ago

Medication

Medication

Has anyone had a temporal lobectomy, if so how soon were you able to wean off your meds and how was the process. My dr told me 2 years seizure free. My surgery was in July of last year so I've still got almost a year, but I'm having a lot of trouble with pharmacies and feel like it would be better to wean off early than to potentially go without them all of the sudden. I would like some opinions on this.

A MyEpilepsyTeam Member said:

I’m the opposite. I couldnt do a second if I wanted. Although Im going to do the DBS ( deep Brain Stimulator ) surgery. Hopefully this will help more.

edited, originally posted about 2 months ago
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Does Anyone Else Still Have A Driver's License?

Does Anyone Else Still Have A Driver's License?

I've always thought it was strange that none of the doctors I've seen have said i can't drive anymore. Curious if anyone else still has a valid license and drives daily?!

A MyEpilepsyTeam Member said:

Strict laws in the UK Over 40years I've given it back twice .My partial seizures became uncontrolled 10 years ago so I voluntarily surrendered it for good I do know a lady who was diagnosed late on in… read more

posted 3 months ago

Does Anybody Else Just Zone Out

Does Anybody Else Just Zone Out

I have times where i just zone out i dont think its a seisure like i am still there and know whats going on but im totaly in thought about somthing and i usualy dont know what that somthing is i Notice im doing it somtimes and almost have to pull myself out of it. people notice and always ask me if im ok.

what do you guys think i dont want to ask my neurologist he will just say its a seisure and upp my meds.

A MyEpilepsyTeam Member said:

I've gone through this many times myself. As long as it doesn't turn into a seizure I think you're fine. If you think he won't believe you then don't tell him. But make sure to watch out for warning… read more

posted about 2 months ago

Any Body Else Go Without A Seizure For A Month Or Two Then Have A Small One Out Of Nowhere For No Reason Or Is That Just Me

Any Body Else Go Without A Seizure For A Month Or Two Then Have A Small One Out Of Nowhere For No Reason Or Is That Just Me

A MyEpilepsyTeam Member said:

How awful for u, to go from hardly to quite a few every month. It takes me psychologically ages to get over just 1 even though I can can with 1 per six months. Hope urs get less as a massive blessing… read more

posted over 5 years ago

Brain Tumors And Epilepsy

Brain Tumors And Epilepsy

Wondering how many others in the group had their epilepsy start after brain tumors.I was diagnosed with lung cancer wit metastases to the brain in 2019.I was given Gamma Knife radiation treatments to my brain tumors.At first everything was going well but about 5 months in some necrosis and edema started showing on my scans.The necrosis and edema kept getting worse and I had a small focal seizure I was put on steroids and more scans were ordered.A few months later after no other events I was… read more

A MyEpilepsyTeam Member said:

Hi Andrew! I was in a similar situation- I had a rare form of cancer called Langerhan's cell Histiocytosis. Diagnosed when I was 17 months old (1993). Had a tumor behind my left eye. Went through… read more

posted 7 months ago
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Is There Anyone On Tegretol Who Has Also Been Vaccinated Covid-19

Is There Anyone On Tegretol Who Has Also Been Vaccinated Covid-19

Due to many controversial criticism etc. against the Covid-19 vaccination for people with epilepsy, I did not get the vaccination. But due to work requirements, I am strongly considering getting a vaccination
I take Tegretol (600mg / day). But as I have read, that some older antiepileptic medications can 'collide' with Covid vaccinations, especially with Tegretol. Due to the way both, the vaccination and how Tegretol work in the body, it is possible that getting a Covid jab can induce long… read more

A MyEpilepsyTeam Member said:

THANK-YOU ALL!. I've gotten both shots and no real problems yet. The only thing is that my shoulder (where I got the shot) hurt for 2...3 days. And because I've got quite a physical job, that did get… read more

posted 4 months ago

Has Anyone Had Brain Surgery To Correct Their Seizures? Im Scared And Would Love To Hear Your Stories And Get Any Advice I Can

Has Anyone Had Brain Surgery To Correct Their Seizures? Im Scared And Would Love To Hear Your Stories And Get Any Advice I Can

I've got complex partial seizures with identified abnormality in my temporal lobe. Seizures are focal so my neurologist said surgery is an option I should consider, but I'm pretty scared and not sure it is worth it. My seizures aren't very bad and I could still lead a mostly-normal life but I plan to become a doctor and with sleep deprivation being a major trigger for me it may prevent me from pursuing my desire to work in a hospital (which means long hours). Im not sure about the process of… read more

A MyEpilepsyTeam Member said:

I have grandma seizures and a doctor told me when I was 17 to have brain surgery and was scared to get it

posted 4 months ago

This Is For The Older Women Out There. Did You Ever Take Hormone Replacement Therapy?

This Is For The Older Women Out There. Did You Ever Take Hormone Replacement Therapy?

My seizures started at 52. I have no idea why, other than that it was a very stressful time. It was also when my perimenopause kicked more into high gear. I'm trying to figure out what side effects are from my meds and what is from hormones. I started HRT last month. I do have more energy, but get stressed easily. I haven't had headaches in a long time and now they are back. I'm just not sure which is worse; HRT or no HRT but epilepsy side effects. I do know that HRT can interfere with… read more

A MyEpilepsyTeam Member said:

I’m peri menopausal where my periods are irregular and I can have no periods for a few months then they Come back for a few it all started when I turned 40 I’m now 45 my mum was put on HRT once and… read more

posted 3 days ago