@Topamax vs Quidexy XL anyone have their child on either of these? Is losing hair a side effect and is this drug a better option for energy during the school day?
My daughter has epilepsy, doctors don't seem to truly listen to her symptoms. We had a great dr but she retired. Since then we seen at least 1/2 dozen each saying that's the wrong meds try this try that. The area affected is around frontal lobe. She has absence, drop, gram mal. In my opinion they just keep changing patterns. The one medicine that has always seemed to help is lamictal. She's on700 mg of lamictal ( name brand ) kepra a low dose and now Trokendi xr samples 200 mg because our… read more
I was put on vimpat a few months ago
In the hopes of weaning off of topamax all together since topamax is not safe with pregnancy. Since starting vimpat I have been feeling extremely tired and just not like myself at all. It has not gotten rid of my seizures at night so my nuerologist wants to keep me on it a bit longer to see if it will kick in. Does anyone have experience with this medication and know how long it took to get rid of seizures/what dosage? Did the side effects get better?
Over the course of one year, ive had very random events of these surges of first pins and needle pains in my legs.
Almost like legs are falling asleep. I go to shake out the feeling walk it off and it gets more intense, my calve muscle contracts like a Charlie horse while the pins and needles are still going on. Shooting pains are going up my spine. The worse pain in my life. My legs actually become immobile. Toes can't move. Etc. Can't feel outside of skin etc. I tried rubbing my legs this… read more
I am so depressed and lethargic from taking it. I cry a lot and am lifeless. Bad headaches and very light headed. Dizzy all the time.
I am on Keppra xr 3500mg and tegretol xr 1600mg. 3 months ago my sodium level was 134 now it's 128. I was wondering if that sodium level was dangerous at all to my health. My doctor lowered my tegretol to 1400. Has anyone had any experience like that?
Hi, I keep reading really bad things about Zonegran side effects, I was supposed to start last week, but keep postponing. I usually get 1-2 nocturnal seizures every 2-3 months, so I’m not sure if it’s even worth the change (currently on Tegretol). I would really appreciate if anybody could share their personal experiences and or effects with this med. Thanks 🙏
I took Dilantin for a few years as a child. I'm not sure why my doctor switched me from Dilantin to Tegretol, but I'm assuming it's because I broke through on it. I really liked it, but I suppose what I'm on now is best for controlling my seizures.