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Top 10 Search Results for "Parietal lobectomy"

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Does Anyone Have Experience With The RNS Device? My Brother Has It Implanted And Is Doing Terrible With It.
A MyEpilepsyTeam Member asked a question 💭

He's having crazier ,strange seizures . His medication was supposed to decrease ,it's been played with and increased instead. His seizures are bizarre ,I'm sorry ,there's no other word to describe them. I'm His only care taker and it's scary. Should we get the device turned off?

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I have had the RNS for 4 or 5 years. My medication never decreased. Doctors have adjusted the power multiple times which never caused me any harm. I wouldn’t have the device… read more

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Taste
A MyEpilepsyTeam Member asked a question 💭

How many days after a seizure does your mouth return to tasting food. Everything at the moment taste sour

A MyEpilepsyTeam Member

Nothing taste different to me, but I sometimes crave water when I'm having a strong aura. I start swollowing a lot too, even if I'm not drinking anything

Have Any Of You Had A Lobotomy? Or The VNS Implant? And What Are Your Thoughts And Opinions On Both?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I've had both brain Sugery and VNS implant. The brain surgery helped decrease my seizure frequency down. They are still unpredictable and not 100% controlled with meds, but they are not as violent as… read more

Hi Have Any Of You Guys Had Temporal Lobectomy Surgery? If So What Is Outcome And Was It Successful
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

After approximately 18 years of trying all sorts of medications and treatments to control intractable daily / weekly temporal lobe seizures and approximately monthly grand mal seizures, I made the… read more

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I'm Curious About Brain Surgery. 🧠
A MyEpilepsyTeam Member asked a question 💭

It turns out I am medication and VNS resistant. My neurologist is really pushing for another 7 day in-study so we can look into brain surgery. I am scared poopless. 😱 I want to know about your experiences...did it work? how was the surgery itself? Any info is appreciated.

A MyEpilepsyTeam Member

It is quit OK to be scared however do as much research on your own before going through any surgery that shit ain't cheap believe me..... However the device is chemistry based it works for some and it… read more

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Do Any Of You Have Seizures Occurring In The Insular Cortex Or Parietal Operculum?
A MyEpilepsyTeam Member asked a question 💭

So after my two attempts at brain surgery have not made me seizure free even with medication, my doctor suspects that my epilepsy is occurring in the insular cortex and or parental operculum. Unfortunately, it seems like it's not a much studied form of epilepsy and may actually be not that common. For those that have it, I'm just wondering how you moved forward with managing it? I'm asking because quite honestly, my seizures are having some affects that I never had pre surgery and is making me… read more

A MyEpilepsyTeam Member

I don’t know and neither do they.

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Has Anyone Had A Temporal Lobectomy? What Was Your Experience Like? How Did It Improve/ Affect Your Seizures?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I had right temporal lobe surgery back in 1988. It was one of the best things I have ever had done. It reduced my seizures from being intractable to rare. The neurologist told me that the pattern of… read more

Discuss Your Pre-surgefy And Post-surgery Life.. Whats Changed For Better Or Worse?
A MyEpilepsyTeam Member asked a question 💭

Im 2yra post temporal lobe tomy (L) and Im noticing I now have vertigo (which I never had previously). I tried to do roller coasters and Was done after just 2. I used to be a roller coaster junkie pre-op, now, not so much.

A MyEpilepsyTeam Member

Chapter 2
After I got a grasp of all the emotional stuff I went through I do amazing. Most of what they took brain wise was scared and didn't work because of the Enchphilitis at 4
I… read more

Tell Me About Your Parietal Lobe Epilepsy …
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Parietal Lobe Epilepsy is an uncommon type of seizure, but here is a link to details from the International League Against Epilepsy: https://www.epilepsydiagnosis.org/seizure/parie...

Has Anyone Had Brain Surgery To Correct Their Seizures? Im Scared And Would Love To Hear Your Stories And Get Any Advice I Can
A MyEpilepsyTeam Member asked a question 💭

I've got complex partial seizures with identified abnormality in my temporal lobe. Seizures are focal so my neurologist said surgery is an option I should consider, but I'm pretty scared and not sure it is worth it. My seizures aren't very bad and I could still lead a mostly-normal life but I plan to become a doctor and with sleep deprivation being a major trigger for me it may prevent me from pursuing my desire to work in a hospital (which means long hours). Im not sure about the process of… read more

A MyEpilepsyTeam Member

Hello Jessicakate, I know how You feel right now. I had the depth electrodes test a number of years ago and was scared something would go wrong during or after the surgery was over when I was just… read more