He's having crazier ,strange seizures . His medication was supposed to decrease ,it's been played with and increased instead. His seizures are bizarre ,I'm sorry ,there's no other word to describe them. I'm His only care taker and it's scary. Should we get the device turned off?
How many days after a seizure does your mouth return to tasting food. Everything at the moment taste sour
Nothing taste different to me, but I sometimes crave water when I'm having a strong aura. I start swollowing a lot too, even if I'm not drinking anything
It turns out I am medication and VNS resistant. My neurologist is really pushing for another 7 day in-study so we can look into brain surgery. I am scared poopless. 😱 I want to know about your experiences...did it work? how was the surgery itself? Any info is appreciated.
So after my two attempts at brain surgery have not made me seizure free even with medication, my doctor suspects that my epilepsy is occurring in the insular cortex and or parental operculum. Unfortunately, it seems like it's not a much studied form of epilepsy and may actually be not that common. For those that have it, I'm just wondering how you moved forward with managing it? I'm asking because quite honestly, my seizures are having some affects that I never had pre surgery and is making me… read more
I don’t know and neither do they.
Im 2yra post temporal lobe tomy (L) and Im noticing I now have vertigo (which I never had previously). I tried to do roller coasters and Was done after just 2. I used to be a roller coaster junkie pre-op, now, not so much.
Parietal Lobe Epilepsy is an uncommon type of seizure, but here is a link to details from the International League Against Epilepsy: https://www.epilepsydiagnosis.org/seizure/parie...
I've got complex partial seizures with identified abnormality in my temporal lobe. Seizures are focal so my neurologist said surgery is an option I should consider, but I'm pretty scared and not sure it is worth it. My seizures aren't very bad and I could still lead a mostly-normal life but I plan to become a doctor and with sleep deprivation being a major trigger for me it may prevent me from pursuing my desire to work in a hospital (which means long hours). Im not sure about the process of… read more