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He's having crazier ,strange seizures . His medication was supposed to decrease ,it's been played with and increased instead. His seizures are bizarre ,I'm sorry ,there's no other word to describe them. I'm His only care taker and it's scary. Should we get the device turned off?
How many days after a seizure does your mouth return to tasting food. Everything at the moment taste sour
Nothing taste different to me, but I sometimes crave water when I'm having a strong aura. I start swollowing a lot too, even if I'm not drinking anything
I've had both brain Sugery and VNS implant. The brain surgery helped decrease my seizure frequency down. They are still unpredictable and not 100% controlled with meds, but they are not as violent as… read more
Is it possible to have a 2nd temporal lobectomy?
I was told that since seizures occur in the left temporal lobe, surgery is not an option, as it could make my memory problem worse.
Is it part of my parietal lobe seizures? Maybe focal aware? I have focal unaware mostly (complex partials), also simple focal aware (auras) of rt temporal parietal lobes, and sometimes bilateral to left side temporal parietal lobes also. Anyone ever experience this type of sensation or is it something else??
Here are all of the facts from the Experts at the Epilepsy Foundation and the US National Library of Medicine about seizures of all kinds but especially epileptic seizures
Epilepsy Foundation
… read more
I had 2 right temporal lobe lobectomies, removing 13%dead brain tissue of the 18% damaged. Unable to remove all 18% because it was too close, making too risky to area of other dead brain tissue. Or it… read more
My main surgery was 3/07/1991. It took very close
to 8hrs long.
It turns out I am medication and VNS resistant. My neurologist is really pushing for another 7 day in-study so we can look into brain surgery. I am scared poopless. 😱 I want to know about your experiences...did it work? how was the surgery itself? Any info is appreciated.
In January I am scheduled to have a temporal lobectomy on my right hand side I was wondering who all has had this procedure done before and how it went
Thank you! Also if it makes you feel any better my neuro said the exact same thing. I had an eeg in 2016 and 1 seizure was on the left side so they shut operation down. Only in September did they… read more