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My name is Missy I'm a proud mother a five girls. My youngest who is 6 years old is Madelyn. They have her on Oxteller pill form. 3 twice daily. She has spoke with seizures and was having grand mal seizures so far we have been seizure free since April when they adjusted her medicine. Her previous medicine was trileptal. This is my problem it doesn't matter what I do or which medicine she's on. She is extremely sleepy and it is affecting her in school, when she sleeps she doesn't learn I need… read more
Trilepal and Oxtellar are the same drug .and yes it will make you tired,and hopefully ur daughter will not suffer more seizures like I do during hormones due at mense time which are linked to… read more
Dr. is taking me off Oxtellar XR putting me back on Depakote and Vimpat but is adding Klonipin he said take it every night. Slept great! Feel great... So far not stressed. Dr. Said take Kloipin every night what do I do? I don't want to get addicted? I feel like me
Oxtellar Xr I had breakthrough seizures
What kind of side effects have you had from this medicine and does it make you gain weight?
The tip of my tongue feels numb and inside of lips to be exact.
I have the same issue with vimpat or zonisimide but told I can't stop taking them and it is common
Hey guys, does anyone who is on this medicine notice xcopri helps with anxiety too? I was on epidiolex and vimpat before i got pregnant. I recently gave birth and now i am still on vimpat but completely off of epidiolex because they want to see how xcopri works for me. Now i notice i have bad anxiety everyday, and that is one of the triggers for seizures. I am trying my best to stay calm and hoping that when i get to a higher dose of xcopri that’ll help with anxiety too. Main dose is 200mg , i… read more
It’s rough, going from 15mg to 200. I just got to the 200mg and have terrible dreams and night sweating. You’ll be exhausted and have midday crashes, I’m on LT disability. You get brain fog prior to… read more
My doctor is recommending cenobamate for my son, who is 13 year old. He has focal onset aware seizures and take Oxtellar XR. He has tried Keppra and Banzel and both have aggregated the seizures. Does anyone have experience with cenobamate ? Is this too strong for a kid ? What symptoms do you observe ?
I have just started Cenobamate (generic Xcopri) tonight.
Details about Xcopri (Cenobamate) from the US National Library of Medicine: https://medlineplus.gov/druginfo/meds/a620021.html
On the… read more
Hi there. I was on Oxtellar, but my doctor switched me to Lamictal. She did so after I had been sent a 3 month subscription from my mail order pharmacy. I can’t send it back and my neurologist’s office won’t take it. Oxtellar is an expensive drug. I feel horrible that I have this sitting around when people who need it and can’t afford it are struggling. Any thoughts on what I can do with this as opposed to having it discarded by a pharmacy? Any ideas are welcome.
@A MyEpilepsyTeam Member I would suggest that you can contact your physician to see be if you can donate or see if they're have some one that cannot afford it and give it to someone that cannot… read more
I am on tripetal 300 mgs 1 in the a.m. n 1 in the p.m. n [[treatment:lyrica:5508c0c31fcaa[[phone:39233004425]] 100:]] mgs 1in the a,m, n 1 in the p.m. onfi 15 mgs 1 in the a.m. n 1 in then 1 in the p.m. my dr wants to to extroial xl it is new one with 150 mgs I think it is same as the trileptal is this going to help my sodium level any cause it is always a up n down at different times they take it or can someone relate to this n tell me what they did to keep their sodium level stable I heard… read more
ty Erica