I use slow-breathing and self-calming techniques. Once I have one, then I think to myself, "Calm down, slow down your heart rate, don't get over irritated and just stay calm". In other words… read more
I have had tonic clonic seizures from the get go. No aura, bad ictal phase. I have pretty bad bites to my tongue. I had one seizure from the standing position which was my worst as I stand almost 6… read more
My Epileptologist explained it to me! I asked about Nasal spray. He said I like giving it to patients for generalized sz w/ aura. I like giving Ativan to patients w/ status.
Dr.thinks my daughter has Lennox syndrome on top of costello syndrome.Can anybody tell me about Epidolex,or Nayzilam,he is starting treatment wih these.Any help would be greatly appreciated!!!
I can't control when it will come out, so I would have to be alone for 2 days.
I have at least 3-4 on a good day
Its kind of hard to see myself getting an answer or getting through this bs tbh been fighting them for about 6 years an nothing lol 😆 WOW
I have them once a month for 2 days, the first day can be between 5-10 and the second day 0-2, 3. I used to be anle to predict around when they would occur because it was the same time of the month… read more
So, we are in the process if switching to a new neurologist for my daughter. We had our first visit this past week and he prescribed Nayzalom. My daughter Alicia has never needed a rescue med and I pray she never does
She is 28 and goes out in the community with two different aides, and also participates in Arc and other programs. I was told that noone is is allowed to legally give her the nayzalom in an emergency. I do not understand because obviously she would be unable to give… read more
Correct the Emt's that responded to my seizures in 21 laid on my back. Broke my L2 vertebrae.
They come on suddenly I cannot talk right ,my vision goes blurry , I try to ignore it, when more problems occur when I don’t recognize things. I let it ride. Ex. My husband asked me a question, I couldn’t communicate at all. He said to me go to bed!They stop for a few minutes and start the same thing. I took an Ativan to stop it. It lasted an hour! My friend called the Dr’s office for me . My phone blocked their message , they called my husband! Unblock the phone block unless you have #… read more
It is an absence. I have them .
I usually feel my seizures coming but I have not felt none of these coming I was standing up last night helping my husband and had one luckily he was right there or I would have fell. And if it wasn't for my dog I wouldn't have known to lay down for any of the others I don't know it's caused the uprise in my seizures or for me not to be able to feel these ones any advice on what's going on on what's going on or why so many? Is it normal to have spurts like this?
Do any of you use something that you smell or nasal spray that helps you disrupt an aura? My doctor prescribed Nayzalim nasal spray. After insurance, it's still very expensive. I didn't get it. I'm looking for other options.
Have had it used on me 3 times and it worked every time. I do dislike the drip down my throat but a whole lot better than an ambulance ride