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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 4 Search Results for "Nayzilam"

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Can Anybody Tell Me Anything About Epidolex,or Nayzilam.

Can Anybody Tell Me Anything About Epidolex,or Nayzilam.

Dr.thinks my daughter has Lennox syndrome on top of costello syndrome.Can anybody tell me about Epidolex,or Nayzilam,he is starting treatment wih these.Any help would be greatly appreciated!!!

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Nasal Spray

Nasal Spray

Does anyone use a nasal spray as a rescue remedy ?I'm particularly interested in people who have partials as I would like to try it but someone would need to do it for me My awareness is poor then

A MyEpilepsyTeam Member said:

Thank you so much Sweetnsimple. I do receive an infusion weekly It can be hard on the seizures because I get sick very easily. So I was just trying to say be real careful seizure wise when you get… read more

posted 5 months ago

Has Anyone Tried Any Of The Rescue Meds And Have Anyone Ever Had Or Applied For PIP?

Has Anyone Tried Any Of The Rescue Meds And Have Anyone Ever Had Or Applied For PIP?

A MyEpilepsyTeam Member said:

Thanks for the info Funnily enough I had a brief conversation with my new epilepsy nurse &she mentioned nasal rescue meds

posted 6 months ago

Hello. I Have A Question For You All Please?

Hello. I Have A Question For You All Please?

I was just invited to my guys family's thanksgiving dinner. I know it's a while away but I'm looking for advice. Our relationship is going in the serious direction. I wondered when it would be appropriate to mention my epilepsy to anyone in his family. Or should I even tell them at all? Should I wait until it's more serious? Like engagement serious? My guy hasn't told them anything about it. Thank you for any advice you may have.

A MyEpilepsyTeam Member said:

I kept it a secret from my boyfriend until about a month later I figured it was better he knows than for something to happen and then all be surprised he figured it might be a good idea to tell his… read more

posted 4 months ago