Nayzilam and epilepsy | MyEpilepsyTeam

Connect with others who understand.

sign up Log in
Resources
About MyEpilepsyTeam
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Nayzilam"

reset
Nayzilam
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I use slow-breathing and self-calming techniques. Once I have one, then I think to myself, "Calm down, slow down your heart rate, don't get over irritated and just stay calm". In other words… read more

What Is Tonic Clinic Seizure
A MyEpilepsyTeam Member asked a question 💭
•
View reactions
A MyEpilepsyTeam Member

I have had tonic clonic seizures from the get go. No aura, bad ictal phase. I have pretty bad bites to my tongue. I had one seizure from the standing position which was my worst as I stand almost 6… read more

What Is This Nasal Spay I Keep Hearing About?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

My Epileptologist explained it to me! I asked about Nasal spray. He said I like giving it to patients for generalized sz w/ aura. I like giving Ativan to patients w/ status.

Can Anybody Tell Me Anything About Epidolex,or Nayzilam.
A MyEpilepsyTeam Member asked a question 💭

Dr.thinks my daughter has Lennox syndrome on top of costello syndrome.Can anybody tell me about Epidolex,or Nayzilam,he is starting treatment wih these.Any help would be greatly appreciated!!!

•
View reactions
Sponsored Content
Learn more about treatment options for epilepsy Read more >
Are There Places Sufferers Of Epilepsy Seizures Can Temporarily Go To To Release These Seizures As I Am Not A Nice Person When Mine Happen
A MyEpilepsyTeam Member asked a question 💭
•
View reactions
A MyEpilepsyTeam Member

I can't control when it will come out, so I would have to be alone for 2 days.

Does Anyone Else Have Multiple Seizures A Day
A MyEpilepsyTeam Member asked a question 💭

I have at least 3-4 on a good day
Its kind of hard to see myself getting an answer or getting through this bs tbh been fighting them for about 6 years an nothing lol 😆 WOW

•
View reactions
A MyEpilepsyTeam Member

I have them once a month for 2 days, the first day can be between 5-10 and the second day 0-2, 3. I used to be anle to predict around when they would occur because it was the same time of the month… read more

Nayzalom And Whom Can Administer.
A MyEpilepsyTeam Member asked a question 💭

So, we are in the process if switching to a new neurologist for my daughter. We had our first visit this past week and he prescribed Nayzalom. My daughter Alicia has never needed a rescue med and I pray she never does
She is 28 and goes out in the community with two different aides, and also participates in Arc and other programs. I was told that noone is is allowed to legally give her the nayzalom in an emergency. I do not understand because obviously she would be unable to give… read more

A MyEpilepsyTeam Member

Correct the Emt's that responded to my seizures in 21 laid on my back. Broke my L2 vertebrae.

I Do Not How Many Of Us Get Frequent Flurries?
A MyEpilepsyTeam Member asked a question 💭

They come on suddenly I cannot talk right ,my vision goes blurry , I try to ignore it, when more problems occur when I don’t recognize things. I let it ride. Ex. My husband asked me a question, I couldn’t communicate at all. He said to me go to bed!They stop for a few minutes and start the same thing. I took an Ativan to stop it. It lasted an hour! My friend called the Dr’s office for me . My phone blocked their message , they called my husband! Unblock the phone block unless you have #… read more

•
View reactions
A MyEpilepsyTeam Member

It is an absence. I have them .

Hell I Need Help I Have Had Over Seven Seizures In 2 Days I Don't Know Why I'm Having So Many The Last 2 Days Or Why I Can't Feel These
A MyEpilepsyTeam Member asked a question 💭

I usually feel my seizures coming but I have not felt none of these coming I was standing up last night helping my husband and had one luckily he was right there or I would have fell. And if it wasn't for my dog I wouldn't have known to lay down for any of the others I don't know it's caused the uprise in my seizures or for me not to be able to feel these ones any advice on what's going on on what's going on or why so many? Is it normal to have spurts like this?

•
View reactions
A MyEpilepsyTeam Member

I have mine in clusters sometimes. Nayzilam and Volcort are 2 great rescue nasal sprays that help stop cluster seizures that ur doc can prescribe for you so when this happens you can just spray it up… read more

Nasal Spray
A MyEpilepsyTeam Member asked a question 💭

Do any of you use something that you smell or nasal spray that helps you disrupt an aura? My doctor prescribed Nayzalim nasal spray. After insurance, it's still very expensive. I didn't get it. I'm looking for other options.

A MyEpilepsyTeam Member

Have had it used on me 3 times and it worked every time. I do dislike the drip down my throat but a whole lot better than an ambulance ride