when i was a child (10-16) years old i was prescribed but when i left school the doctors changed my medication. why was this when mysoline was controlling my epilepsy. whilst on mysoline i was having 1 maybe 2 fits aweek but since they change my medication my fits have increased and i am unable to work
I would not pay attention to a School GP, who I think told you to go "Cold Turkey". I know some people stop having seizures naturally. Find a Neurologist or Epileptologist who is very observant, can… read more
I know now they say not to take mysoline while pregnant but 45 years ago it was given. What happens when it is taken while pregnant?
I have recently started topiramate. I have lots of the side effects including fatigigue, slow thinking, clumsy walking, messed up speech. My question is this: do these get better? As is, I would rather try something different.
I had horrible side effects couldn’t wake up didn’t eat couldn’t remember why I went out of one room by the time I got to the next. It was bad they took me off of it in a matter of a couple months… read more
Does anyone know of epilepsy medication that is linked to SUDEP. Just wondering. Many thanks!
If you are at risk of SUDEP, then your neurologist/epileptologist might have prescribed a seizure stopper medication that is on your medical record. Do you like alone? If not, then is someone who… read more
I know it is one of the older medications out there. I would like to know positive or negative experiences you had while taking this drug.
I was on Dilantin for many, many years when I was young. I also experienced gum problems and dizziness. I was weaned off it though when I was about 35.
I was diagnosed with epilepsy at 22. No injuries
Or anything. I wonder if anyone was also diagnosed out of no where and what medicine you’re on?
I was diagnosed at three years old. I never knew the cause for 40 years. I felt it had to be my birth weight, 12 lb. 9 oz., being pushed down the stairs when I was two or a 105 fever when I was… read more
Hello,
Me and my boyfriend are thinking about having a baby in the future. I have a generalized form of epilespy that is controlled, but I will be on medicine for the remainder of my life. My doctor says I can't be on my meds while pragnaet and I guess I want to hear stories about what this has been like for other people
I had 2 kids my dr changed my meds while I was pregnant I seized a few times too but my kids turned out fine now they are 27 and my eldest will be 30 in October
speak to your dr about the safest… read more
I’m on a lot of medication for a variety of conditions. Within the last two years I’ve had some teeth removed. This is in spite of brushing my teeth really well. I’ve been trying to drink a half gallon of water every day.
My son does not like all the side effects and is not wanting to add a 3rd. Incredible to think this is best option. Is it possible the 2nd med (Lamictal) that was added has caused the increase in his seizures? Shouldn't we try to back off of that first?
There are many of us , where one medication won’t work to control our seizures of the type of Epilepsy we have.
I’m on 5 medications, with the DBS ( Deep Brain Stimulation ) and still have seizures… read more
Me tooooo!!!