Epilepsy

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Mysoline

Mysoline

I know now they say not to take mysoline while pregnant but 45 years ago it was given. What happens when it is taken while pregnant?

Mysoline

Mysoline

when i was a child (10-16) years old i was prescribed but when i left school the doctors changed my medication. why was this when mysoline was controlling my epilepsy. whilst on mysoline i was having 1 maybe 2 fits aweek but since they change my medication my fits have increased and i am unable to work

A MyEpilepsyTeam Member said:

Even if you don't have surize could still have epilepsy even thought your taking your meds

posted over 3 years ago

Clonazepam

Clonazepam

I am on clonazepam 10mg twice per day, as well as Keppra 3000mg per day, Zonegram 400mg per day. Yet I stil l have grand mal seizures at least once per fortnight. The Doctors won't do anything about it as I have already tried Mysoline, Tegrotol, Epilium, Vimpat, Dilantin etc. What other alternatives can i do?

A MyEpilepsyTeam Member said:

You may want to search on meds that deal with your type of Epilepsy. Maybe you can convince your Dr. To try one of those.

posted over 1 year ago

Dilantin

Dilantin

can people go into remission on dilantin medicated

A MyEpilepsyTeam Member said:

Im on 400 a day.. i weigh 204
Working good..

posted about 3 years ago

Dilantin

Dilantin

Anyone gets Tremors out of no where, kinda like cold chills in the head? I seem to get them when i get nervous and excited and when i get a lack of sleep. I never had them before and wondering if it's because i am off my meds hence i can't afford them.

A MyEpilepsyTeam Member said:

Regarding not able to afford your meds, contact the manufacturer and they will help with cost. If you do not have insurance then they will be able to… read more

posted over 3 years ago

Has anyone ever had an increase or intensity in seizures while coming of a medicine?

Has anyone ever had an increase or intensity in seizures while coming of a medicine?

I have been slowly coming off my main seizure medication (Banzel) and my family has noticed an increase in my seizures, and the intensity or violence in them. is that a common thing to go through when coming off a seizure medicine?

A MyEpilepsyTeam Member said:

Brittany, I have had an increase in the number and intensity of seizures while I was coming off mysoline and tegretol. With the tegretol since it was… read more

posted over 2 years ago

Having children

Having children

Hello,

Me and my boyfriend are thinking about having a baby in the future. I have a generalized form of epilespy that is controlled, but I will be on medicine for the remainder of my life. My doctor says I can't be on my meds while pragnaet and I guess I want to hear stories about what this has been like for other people

A MyEpilepsyTeam Member said:

Hope this helps

posted almost 3 years ago

Anyone else allergic or had bad reaction to CBD?

Anyone else allergic or had bad reaction to CBD?

Hi,

I recently wanted to add CBD oil to my regime instead of increasing my Toprimate.
Before I was diagnosed with seizures I had tried thought cloud CBD brain and ended up in the ER for what they thought was a pulmonary embolism. I thought it was just by chance because I had also had dental work done that day and was given epip.

Anyway I bought Charlotte Web CBD which is heard great things about. Gave it a try the other day. I had seizures for 2 days and then… read more

A MyEpilepsyTeam Member said:

I vape CBD every and haven't had an issue so far.

posted about 1 year ago

Topamax side effects

Topamax side effects

I have recently started topiramate. I have lots of the side effects including fatigigue, slow thinking, clumsy walking, messed up speech. My question is this: do these get better? As is, I would rather try something different.

A MyEpilepsyTeam Member said:

Hi Flickeringswing- The best bonus to Topamax is averting your seizures. If you've
been seizure free that's great. Meds for any condition have side… read more

posted over 2 years ago

Is there anyone on Trileptal and Folic Acid?

Is there anyone on Trileptal and Folic Acid?

Ive been taking these meds for 3 months now and have crazy migraines. Should I stop taking these meds? (Im still having seizures too lol)

A MyEpilepsyTeam Member said:

I’m ok ... touch wood ... with truleptal but as I’m from Australia I can’t have zonegran!!

posted 4 months ago