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A MyEpilepsyTeam Member asked a question 💭
London, UK

Dear Nathan.
I know your game. I'm one step ahead of you.
The streets are long. Take care of my computer.
Bye,
Saxon.

4 days ago
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MyEpilepsyTeam

What would you want to say in a letter to a friend who has epilepsy? Writing one can be a really meaningful way to show support. Here are some ideas to help guide what to include:

Acknowledge their experience
- Let them know you see how much they manage day to day
- Validate that living with epilepsy can be exhausting, both Show Full Answer

What would you want to say in a letter to a friend who has epilepsy? Writing one can be a really meaningful way to show support. Here are some ideas to help guide what to include:

Acknowledge their experience
- Let them know you see how much they manage day to day
- Validate that living with epilepsy can be exhausting, both physically and emotionally

Show you're willing to learn
- Express that you want to understand their condition better
- Ask if they'd like to share what their seizures look like and how you can help if one happens

Offer practical support
- Let them know you're happy to adjust plans or traditions to work around their needs
- Remind them it's okay to say no or change things up — you won't take it personally

Reassure them
- Make it clear that epilepsy doesn't change how you see them
- Let them know they don't have to face it alone

A heartfelt letter can go a long way. Even just saying "I'm here, I want to understand, and I've got your back" can mean the world to someone navigating life with epilepsy. 💙

4 days ago

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