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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Who else is constantly experiencing fatigue in their legs right down to both feet? To the point it’s causing bad fatigue in both legs into

A MyEpilepsyTeam Member asked a question 💭
Hayes, VA

their feet? Mine is causing me to stay confined to my couch right now when I have things to get done at home and I have no way around it. My left leg is starting to catch up with my right leg now . No only that I’m feeling throbbing in both my feet too from the time I get up til I lay back down for the evening. This has become very frustrating and exhausting
as well.

October 14
 · 
Reactions

Answer Summary

Members connected over the shared struggle of constant leg and foot fatigue that limits daily movement, with many describing how the... Read more

Members connected over the shared struggle of constant leg and foot fatigue that limits daily movement, with many describing how the exhaustion confines them to their couch or leads to falls and drop attacks. Several members shared their situations, including nerve damage from accidents, flat feet, and spinal issues across multiple regions, along with tools like canes, walkers, and doctor-prescribed inserts to help manage mobility. A recurring theme was the frustration of feeling unheard by medical teams, with many encouraging each other to advocate firmly for further testing like MRIs and to push for real answers.

A MyEpilepsyTeam Member

Rhondaschnee He’s the thing with a can or walker with me and the way I proceed them. I feel all that does is tie my hands up. And gen I ask myself what am I supposed to do if I need to carry or hold something. Not to mention my legs tire out quickly. I want something to conserve my energy. Even going up and down steps on foot is tiring for me. I’m only 51 and going through this now. Have been for probably about three years now it’s star progressing last year and since July it’s probably progressed more.

October 14
MyEpilepsyTeam

What you're going through sounds really exhausting and frustrating, especially when you have things to get done. You're definitely not alone — many MyEpilepsyTeam members describe deep, draining fatigue that affects their whole body, including their legs and feet.

Fatigue is one of the most common experiences for people Show Full Answer

What you're going through sounds really exhausting and frustrating, especially when you have things to get done. You're definitely not alone — many MyEpilepsyTeam members describe deep, draining fatigue that affects their whole body, including their legs and feet.

Fatigue is one of the most common experiences for people living with epilepsy. It can come from several directions at once, including:

- Seizure recovery — the postictal phase after a seizure can feel like running a marathon, leaving muscles weak and everything aching
- Anti-seizure medications (AEDs) — some are known to cause significant fatigue and physical heaviness as side effects
- Poor sleep or nocturnal seizures — disrupted sleep can drain your energy from the moment you wake up
- Depression — which is a known comorbidity of epilepsy and can intensify physical fatigue The throbbing in both feet throughout the entire day is something worth bringing up with your neurologist as soon as possible, especially since it's limiting your daily activity. It's important not to adjust any medications on your own.

Keeping a symptom diary noting when the fatigue and throbbing are worst, your sleep quality, and any recent seizure activity could really help your doctor spot patterns and adjust your treatment plan if needed.

October 14
A MyEpilepsyTeam Member

Living like this is very difficult 😥

1 day ago
A MyEpilepsyTeam Member

Quinn, I live in a condo upstairs which has 15 steps and always have to hold on. I have weakness in both legs too down to my feet. Has your neurologist done an MRI?

5 days ago
A MyEpilepsyTeam Member

LoriHobgoodLewis I’m actually in a garage apartment and it’s very small. It just has a living area small kitchen bedroom and very small bathroom. But I’ve been trying to figure out what will work for ne for a good while now. Especially now that there’s weakness in my lower spine . I hate to be demanding in my upper coming appointment next month but at this point I feel like I have to to try and push them to figure this out for me so I don’t feel so exhausted on a daily basis. Enough is enough.

6 days ago

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