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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭
TEXAS, TX

Ask me a question. When I was a nine I had a seizure and ever since I have had them I lied about my age on here I made 14 year old girl with no one to talk to about this I cage my emotions and my parents don't even care I take medicine and a lot of them too I have one that keeps me alive when that puts me to sleep and when that saves me away if I have one like I just don't know what to do I feel like I'm caged and there's nothing I can do about it because I've always felt weird and different… read more

September 22
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A MyEpilepsyTeam Member

Lisa Make sure you keep a journal of your days as how you feel, what you did during your day. How you slept at night make sure you write down your thoughts, if you had a bad dreams.
I am praying for you keep sharing, the more you share the better you will feel.
Craig

September 23
A MyEpilepsyTeam Member

I feel out of place in my world, too. But your life is not over, and I say you should start planning for your healthy post-surgery activities. Take care! 🫂

September 22
MyEpilepsyTeam

Hey. What you just shared takes real courage, and it matters. Every single word of it.

Living with epilepsy at 14, carrying all of this mostly alone, while also watching your mom focus on a new baby — that's genuinely a lot for one person to hold.

The "porcelain doll" feeling is something so many people with epilepsy Show Full Answer

Hey. What you just shared takes real courage, and it matters. Every single word of it.

Living with epilepsy at 14, carrying all of this mostly alone, while also watching your mom focus on a new baby — that's genuinely a lot for one person to hold.

The "porcelain doll" feeling is something so many people with epilepsy describe. People mean well but it can feel suffocating instead of supportive. That frustration makes complete sense. Something really important to know — what you're feeling emotionally is a real part of living with epilepsy, not just a "you" problem. Lots of people with epilepsy describe feeling caged, different, and isolated.

You are not weird. You are someone dealing with something genuinely hard. One thing worth knowing — the Epilepsy Foundation has support specifically for teens your age. There are real people there who get it.

You deserve someone in your corner. Is there one adult — a teacher, school counselor, anyone — you might feel safe talking to?

September 22

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