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A MyEpilepsyTeam Member asked a question 💭
Pretoria, ZA
September 7
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A MyEpilepsyTeam Member

It helps me get an good night sleep😴

September 8
A MyEpilepsyTeam Member

It hasn't triggered any seizures for me. (Alcohol does, of that I am absolutely certain.) After I fired my first neurologist and I finally saw an epileptologist, he authorized my medical cannabis card right away, before it was made legal in my state. His take was that my heavy lifelong cannabis use is what likely kept me seizure-free for years, considering that I was most certainly born with the AV malformation in my RTL. He had no problem with it at all, though he did mention that it's different for everyone. He acknowledges the benefits of the CBD component, the quality-of-life social aspects, the use as a sleep aid, for pain relief, and to ease the symptoms of my Complex PTSD.

I was diagnosed at age 62, I'm 70 now, and I've been seizure-free since 2019. I've been a user since I was 12 y/o but didn't show symptoms until I was in my mid-fifties, much later than is typical. So, it ultimately boiled down to my own judgement. My primary physician beats me up about possible lung damage from smoking it, so I cut way back and mostly use edibles now.

It varies from person to person. Have a conversation with your neurologist first, keeping in mind that some doctors might be against cannabis usage more on moral grounds than the medical benefit, as is the case between my primary doc and my epileptologist.

September 8
A MyEpilepsyTeam Member

It hasn’t triggered mine

September 8 (edited)
A MyEpilepsyTeam Member

Depends on the person.

September 7
MyEpilepsyTeam

The relationship between smoking marijuana and seizures is complicated — it's not a simple yes or no answer. The effect can vary depending on the type of marijuana, the amount used, and the individual person. Here are some key things to be aware of:

- High-potency or synthetic marijuana has been linked to triggering Show Full Answer

The relationship between smoking marijuana and seizures is complicated — it's not a simple yes or no answer. The effect can vary depending on the type of marijuana, the amount used, and the individual person. Here are some key things to be aware of:

- High-potency or synthetic marijuana has been linked to triggering seizures, so the type of product matters
- THC vs. CBD — THC is the part that causes a "high" and carries more risk, while CBD has actually shown promise in *reducing* seizures for some people
- Dosing is unpredictable when smoking, since each plant varies, making it hard to know exactly what you're getting
- Drug interactions — marijuana can interact with anti-seizure medications, which is an important consideration One MyEpilepsyTeam member shared that marijuana helped them become seizure-free, while another didn't have a great experience with it. Everyone responds differently. The FDA has approved a CBD-based medication called Epidiolex for certain seizure disorders, which is used alongside other anti-seizure medications rather than as a replacement.

It's really worth having an open conversation with a neurologist before trying marijuana or any cannabis product, to make sure it's safe given your specific situation and current medications.

September 7

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