Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭
Seaside, OR

Thoughts on temporal lobe full or partial removal.

August 23
 · 
Reactions
A MyEpilepsyTeam Member

I had my Right Lobectomy Brain Surgery December 3, 2012. I've been seizure free since June 7, 2013. It sure feels nice without having any seizures.

August 25
A MyEpilepsyTeam Member

I had a left temporal lobectomy. They removed a 3-inch cube of my brain, all of my hippocampus. I've been seizure-free for almost 26 years.

August 25
A MyEpilepsyTeam Member

I have epilepsy since I was born started medication around 6 or 7 years old.
Had seizures as a child however they seemed to get less and less while I aged. All medication was stopped when I turned 27yrs.At this time my mind started speeding up like a lawn mower in idle position until you turn it up full throttle. My mathematic ability tripled in 3 weeks. I could add subtract multiply and divide without the help of a calculator. My job became clearer. My cognitive ability was clear and precise. Now years later at age 51yrs my seizures retuned with a vengeance. Lost my job within a few months. Different medications over a 10yr period with many terrible side affects to find the right medication that would work. My only side affect that I have is I sleep more. 67yrs now and have been seizure free for the past 7 yrs.
So I guess what I am saying is epilepsy really never goes away it just takes a break in life. The memory I once found has disappeared as fast as it came.
On medication now and for the rest of my life.

August 25
A MyEpilepsyTeam Member

I had a portion of my left temporal lobe removed in 1998.
It didn’t make me seizure free. But, it did reduce my seizure frequency .

August 23
MyEpilepsyTeam

What are the thoughts on temporal lobe full or partial removal surgery for epilepsy?

Temporal lobe resection (removal) is actually the most common type of epilepsy surgery performed, and it also has the highest success rate among epilepsy surgeries. It's worth knowing the basics before any conversation with a neurosurgeon Show Full Answer

What are the thoughts on temporal lobe full or partial removal surgery for epilepsy?

Temporal lobe resection (removal) is actually the most common type of epilepsy surgery performed, and it also has the highest success rate among epilepsy surgeries. It's worth knowing the basics before any conversation with a neurosurgeon. Here's a quick breakdown of what's involved:

- What it is: A surgeon removes the area of the temporal lobe where seizures begin
- Best candidates: People whose MRI abnormality and EEG seizure activity point to the same spot in the brain
- Brain mapping: Done beforehand to protect critical functions like speech, memory, and movement
- Tailored resection: Removing the abnormality *plus* the surrounding seizure zone tends to be more effective than just removing the problem spot alone One MyEpilepsyTeam member shared that after two brain operations for temporal lobe epilepsy, they went from having seizures almost daily as a teenager to having roughly one per month — and only at night. They did note some short-term memory issues following surgery, which is a known risk worth discussing with a doctor.

It's always important to weigh the potential benefits against the risks, and a neurosurgeon can help determine if this is the right path based on individual circumstances.

August 23

Related Questions

View All
A MyEpilepsyTeam Member asked a question 💭
Westfield, MA

A MyEpilepsyTeam Member asked a question 💭
San Jose, CA