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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭
Staten Island, NY

Usually a neighbor checks on me if they were calling or texting and I don’t answer for an extended period. Then I come to bc of the commotion bc my neighbors come to the apt.

August 17
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A MyEpilepsyTeam Member

I know for a fact when I don’t feel right but it’s like I’m skipping moments. Remember blips here and there like I know was in the shower but I may not remember getting in etc.

August 20
A MyEpilepsyTeam Member

Are you aware or know when you seizure? Or are you unaware when you have them??

August 18
A MyEpilepsyTeam Member

Its nice of your neighbors to look out for you but youd be safer living with others so they can help you. Ask your parents what youre doing. A doctor can also find out for you. Good Luck

August 17
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
If I lived alone I wouldn’t even know I had epilepsy. I’m unable to drive and do so many other things so my parents are looking into assisted living facilities for the future when they’re gone

August 17 (edited)
MyEpilepsyTeam

Living alone with epilepsy and not knowing what type of seizures you're having is a really common and frustrating challenge — and it sounds like you have some wonderful neighbors looking out for you! 💙

Figuring out your seizure type matters because it can help guide the right treatment. Here are some ways to get closer to an Show Full Answer

Living alone with epilepsy and not knowing what type of seizures you're having is a really common and frustrating challenge — and it sounds like you have some wonderful neighbors looking out for you! 💙

Figuring out your seizure type matters because it can help guide the right treatment. Here are some ways to get closer to an answer:

- Ask your neighbors to observe and note what they see when they find you — body position, movements, whether you're responsive, how long it lasts
- Keep a seizure diary or use an app like Seizure Tracker to log what you notice before and after each episode — confusion, soreness, headache, bitten cheek, etc.
- Talk to your neurologist about video-EEG monitoring, which can record brain activity during a seizure to identify the type The clues you notice *after* coming around — like confusion, fatigue, sore muscles, or a bitten cheek — can actually tell your doctor a lot too. Write everything down, even the small stuff. The more detail your doctor has, the better they can help pinpoint what's happening and adjust your care plan.

August 17

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