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August 12
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Answer Summary

Members shared personal experiences on why strobe lights and brightness may only trigger seizures at certain times, with many noting that... Read more

Members shared personal experiences on why strobe lights and brightness may only trigger seizures at certain times, with many noting that sensitivity varies greatly from person to person. Several members offered practical strategies like wearing FL-41 or tinted sunglasses indoors and outdoors, using custom earplugs, and avoiding concerts or venues with strobe lights to manage photosensitive epilepsy. A recurring theme was the emotional weight of adjusting daily life, from giving up video games to leaving social events early, balanced with community encouragement and hope.

MyEpilepsyTeam

That's a really interesting observation. The short answer is that your brain's sensitivity to triggers like flashing lights and patterns isn't constant — it shifts throughout the day based on your body's internal clock, known as your circadian rhythm.

Research has shown that circadian rhythms actually regulate how likely a Show Full Answer

That's a really interesting observation. The short answer is that your brain's sensitivity to triggers like flashing lights and patterns isn't constant — it shifts throughout the day based on your body's internal clock, known as your circadian rhythm.

Research has shown that circadian rhythms actually regulate how likely a seizure is to occur. This means there are certain windows of the day when the brain is more vulnerable, making triggers like visual stimuli more likely to set off seizure activity.

Studies have found that seizure peaks tend to cluster around:

- 8 a.m.
- 8 p.m.

So if flashing lights or patterns seem more problematic at certain times, it may align with these natural vulnerability windows. Other factors can also raise sensitivity at certain times of day, including:

- Sleep deprivation — being tired, especially in the morning, is one of the most common seizure triggers
- Stress levels, which tend to fluctuate throughout the day
- Medication timing — seizure medications may actually be more or less effective at different times depending on how the body processes them

It's worth keeping a seizure diary to track when visual triggers seem worse. Sharing those patterns with a neurologist could help fine-tune a management plan.

August 12
A MyEpilepsyTeam Member

He insensitive to a different ones is called photosensitivity Epilepsy.

There are many of us who are sensitive to those.
Fast strobe lights sometimes trigger my messages. But Im good with most form of light.

Everyone is different with lights triggered seizures.
There are the many who are sensitive in sun outside

And there are those who arn't severally sensitive to light

August 13 (edited)
A MyEpilepsyTeam Member

I'm 1 of those thankfully that isn't sensitive to light.

August 15
A MyEpilepsyTeam Member

What about being in a car. My son apparently hadn't got photosensitive Epilepsy. Last EEG a 8 yrs ago. He can have seizure in the car. Does things moving fast outside of the window or sun rippling through trees trigger them fir some.

August 27
A MyEpilepsyTeam Member

I never had my seizure activity happen primarily around 8 AM &8 PM. Like never. Explanation is 3 fold (avcording to my medical team) location, location & location. Since epilogical activity has been ID'd in more than 40 different brain locations, this is one of the key explanations.

August 15

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