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A MyEpilepsyTeam Member asked a question 💭
Deming, NM

So my son takes kepra they’ve had to hire his dosage to the highest he could have (5 ml) his most recent Dr appointment they saw It STILL isn’t helping him so they decided to prescribe him oxcarbazepine ASWELL which has only made aggression/rage waaay worse idk how to handle this cause it was bad with just the kepra now it’s to the extreme

August 11
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A MyEpilepsyTeam Member

Tell the doctor to switch the meds. Ive been on keppra 1000mg 2 times a day for 26 years. I feel minimal side effects, no rage. Its the only med thats worked for me. Everyones different.

August 13
A MyEpilepsyTeam Member

I’m taking 6 med . Most of them ( NOT ALL ) are taken 3 times a day

I take a told of 20 meds total amount of those 6 meds

August 11 (edited)
A MyEpilepsyTeam Member

Shyenne: Here's the story. Seizure medicine is designed to do one thing: Slow down brain activity. By slowing down the brain the chance of seizures is reduced. Nearly every one of the drugs they prescribe for epilepsy works by increasing something known as GABA, which refers to gamma amino butyric acid. It is an amino acid -- protein -- in the brain. Seizure drugs increase GABA in the brain. Okay, but that is exactly how ethyl alcohol -- booze, yes -- works. People crash their cars when they are drunk because GABA has shut down their brains so much. When I first took seizure medicine, when I was 8 years old, I felt so drunk I could not walk.

Too much seizure medicine is not something you want to mess with. It may stop your son's seizures but it will also slow down his ability to do everything else, like think. That is why he is doing the rage thing. His brain is not working enough for him to consider what is going on. And Keppra is particularly good at that.

You might want to try the different drugs, but you should look for QUALITY, not QUANTITY. Good luck. Regards, Jake

August 13
A MyEpilepsyTeam Member

Hallo Shyenne .. this be William .. Keppra be well known for its rage side effect .. does ypur neurologist listen to you? Do you and your son feel comfortable that they hear what you say? If not you may need to seek another one ., this happen to me ., took 3 times before my wife Jen and me find one who would listen .. if the second med be making your son far worse ., something not be right .. not everyone react same to any med ., what be good for one make another very sick ., or have rage issues .. this be not your son but the med's side effects ., sound like you need a second opinion ., we have to advocate for ourselves and our children ., we know this is frightening .. if he get bad you can go to ER and ask for another neuro .. if they will not listen to you ., not all docs are a good fit with all patients ., we know this from our own experience ., we hope you will find one who listen and work with you to help your son .. they do have to wean him off Keppra before starting another med ., sound like the oxcarbazepine not helping.. we pray you get some help .. as this is frustrating and frightening for you both ., if the neuro ignore you or refuse to listen ., drop them and get another.. be sure he or she will LISTEN to you .. proper doc/patient relationship and communication be VITAL .. hugs and prayers from William and Jen 💜💙🤗🤗🕊🕊

August 12
A MyEpilepsyTeam Member

It depends. They should really monitor it to see what happens and look out for any changes if a change in the blood levels happens then its a issue. I had it happen With Tegretol a few years ago. They put me on almost the maximum and I was told I needed monthly blood tests. I only lasted a few months before they picked up the change and a month later I had to come off it. Also I don't think the combined dosage of the meds matters as much as the meds are made to work independently.

August 11

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