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A MyEpilepsyTeam Member asked a question 💭
Houston, TX

Since im used to this i try to let it go and not feel emotional its hard to say but i kinda just let it be. wait till im back to myself and continue what i was doing. And come here to express my feelings to someone who knows exactly how i feel and what i go through

Thank you 🙏

August 7
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A MyEpilepsyTeam Member

I don't remember what happened during any of the seizures except one which happened last year. Husband was talking to me and he sounded like xxxxx and I spoke back to him like xxxxx. When I came out of the seizure I am talking English again an he he was talking English again.
The seizures that happened before 2024 always needed a nap afterward. i may not have fallen to sleep but my husban always made me get in the bed.

August 9
A MyEpilepsyTeam Member

I’m more like William with the aftershocks. I cry, shake and have the chills and fever and then back to chills for days. And I almost always sleep for 3 hours or more after one. I’m usually laid up for days afterwards, sometimes to the point where I’m bedridden. I’ve had to army crawl to the bathroom or to let the dogs out after the really bad ones- Tonic Clonic ( grand mals ). But I just wait till I’m awake and coherent and then I let one of my friends know and she and her family will come check on me off and on. And after I’m fully recovered from it I try to get back to my usual routine. It doesn’t bother me unless I’m bedridden for over a week.

August 9
A MyEpilepsyTeam Member

Hallo .. this be William .. Sadly, my seizures truly be wiping me out .. I be physically sick with aches and pains all over me .. with nausea, vomiting , migraine headache , chills, sweats and shakes .. for hours even days after the worst of them .. my wife Jen be calling them "aftershocks"., I cannot just be getting back up and going about what I be doing before ., fact be I may not be able to be getting up at all .. my sweet wife stay with me and hold me close .. she warm me to stop the rigours.. severe shakes and chills .. she help me to pray .. to thank Our Father for pulling me through yer another one .. and then I be going to sleep for a good bit .. I suffer LTL ictal asystole.. a very rare form of severe epilepsy .. with seizures powerful enough to be stopping my heart .. Jen restart with CPR .. there be so few like me most doctors never hear of it .. let alone see a person who be having it .. so I be thankful just to be alive .. and here with my Jen .. warm and safe .. knowing I be loved by my family and friends.. what I feel most be gratitude for my life.. and being loved just for being me .. I agree 100 percent with the idea that attitude be everything .. what we be thinking be who we be .. being positive not mean we always be happy with a smile upon our face .. it mean that even in the darkest times we persevere .. believing deep within ourselves that this pain too be passing .. and better time for us be coming ., our stalwart resilience in ourselves .. and our steadfast Faith in Our Father .. be helping us to pull ourselves up yet again .. and continue suas is suas .. onward and upward .. on our journey ., a toirt aghaidth air beatha aon latha aig an am.. facing our life one day at a time .. gum beannaiche adh Dia thu you all .. William and Jen 💜💙🕊

August 9
A MyEpilepsyTeam Member

I never even know when I have a seizure

August 13
A MyEpilepsyTeam Member

My Blackout type seizures, don’t do much.
My moderates seizures I have mild memory struggles.

August 8

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A MyEpilepsyTeam Member asked a question 💭
Sydney, AU

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