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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭

So my diagnosis is Juvenile Myoclonic Epilepsy, JME. The summary is; I had my first seizure in 2020 when I was about 13, got put on Kepra, was allergic, went into psychosis, went to a psych ward, and developed a self harm addiction when I got out. My question is if anyone has had an everlasting aura. Because I get aura all the time even when I’m not having a seizure. And recently I had an episode where I had it last all day for 11 days straight. And even after that I get aura several times a… read more

July 30
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A MyEpilepsyTeam Member

If you get seizures happen a few times a year or a few times a month then its more likely your having seizure control issues. This means you get a lot of auras which raises the risk of seizures. But on the flip side if your not getting seizures at all its also possible these aren't auras and you're just getting really bad side effects.

July 30
MyEpilepsyTeam

That sounds genuinely exhausting — physically and emotionally. What you've been through since 2020 is a lot, and it makes complete sense to be looking for answers and connection around this.

To your question: auras are technically focal aware seizures themselves, meaning the brain is already in a seizure state even during an Show Full Answer

That sounds genuinely exhausting — physically and emotionally. What you've been through since 2020 is a lot, and it makes complete sense to be looking for answers and connection around this.

To your question: auras are technically focal aware seizures themselves, meaning the brain is already in a seizure state even during an aura. Experiencing them frequently, or for extended periods, is something others with epilepsy have reported too. Other MyEpilepsyTeam members have shared ways they cope when auras hit frequently:

- Finding a safe place immediately — even getting down to the floor if out in public
- Using a personal "Stop, Place, and Lay" system — stopping all activity, placing their phone nearby, and lying down safely
- Alerting someone nearby that a seizure may be coming

Having a seizure action plan tailored to your specific situation can really help. A neurologist can work with you to build one that fits your life. Experiencing auras lasting 11 days straight is something worth bringing urgently to your neurologist if you haven't already. That level of ongoing seizure activity needs medical attention — it's not something to just push through alone.

You've already shown a lot of strength navigating everything you have. Please don't hesitate to reach out to your care team about what's been happening.

July 30

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A MyEpilepsyTeam Member asked a question 💭
Salt Lake City, UT