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Primary Generalized Epilepsy but no tonic clonic episodes but absence, myoclonic, eye twitching

July 29
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A MyEpilepsyTeam Member

Yes. If it's dark, or if I have my eyes closed, I can lose track of where "down" is and easily tip over. Soap in my eyes in the shower caused my last big fall. Quick head movements can cause me to lose balance momentarily also. I blame the meds because it's at its very worst starting about an hour after I take my meds, then gets somewhat better throughout the day.

July 31
A MyEpilepsyTeam Member

Between our medications and seizures can cause our struggle w/ balance.

July 29
MyEpilepsyTeam

That feeling of being "off balance" or almost intoxicated is something many people with Primary Generalized Epilepsy relate to, especially with absence and myoclonic seizures in the mix.

Here's why that sensation can happen:

- Absence seizures cause brief lapses in consciousness — even tiny ones you might not fully notice can Show Full Answer

That feeling of being "off balance" or almost intoxicated is something many people with Primary Generalized Epilepsy relate to, especially with absence and myoclonic seizures in the mix.

Here's why that sensation can happen:

- Absence seizures cause brief lapses in consciousness — even tiny ones you might not fully notice can throw off your sense of balance and coordination
- Myoclonic seizures involve sudden muscle jerks that can disrupt your body's ability to stay steady
- Eye twitching (which can be a seizure symptom) may affect how your brain processes visual information, contributing to that "wobbly" feeling

This can also happen during the postictal phase — the recovery period after a seizure — when the brain is resetting. Even after small seizures, some people feel foggy, unsteady, or "not quite right." It's worth mentioning this specific symptom to your neurologist, especially the frequency and timing of when it happens. Keeping a short log of when you feel this way versus when seizure activity occurs could be really helpful for your doctor to see patterns.

July 29

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Miami, FL