Thankfully new meds seem to be helping, praise God! He refuses to let anyone his age know about it, and rather than tell them, instead chooses to just not go anywhere with friends ever. The blackouts are understandably terrifying and he has decided to do school online to reduce the stress of it potentially happening at school so his friends don’t find out. Any input on how to help him understand that it’s not something he should be ashamed of!!? Nothing we say gets through to him on that front.
I too have Blackout Seizures. But before I truly knew they were seizures , I wasn’t sure if I was possibly experiencing a side effect from one or more medications.
I still leaned and assumed them as a seizure
It was until I had an EEG done. That’s when I found out that I was experiencing a form of a seizure.
But before I truly found out I would write down on a calendar when I would have my blackouts or an actual seizure.
Go to www.drugs.com
Research the side effect of his meds. Some meds do have that side effect or they may also cause blurry vision and double visions.
Good post and? I agree with the epilepsy team mentioned about it and other people's opinions here, I used to feel that way at first when I was diagnosed with epilepsy and it took me some time to accept it and did in my life with around my 30s and was diagnosed with at 7 but I grew into it and it is more stable than before and I am ok with that and so is my doc about it also but get people's opinions here and then go to his doc about the post here and go from there about it and good luck with your outcome with it my opinion here amen
@A MyEpilepsyTeam Member
A seizure can happen to anyone at anytime and it’s not our fault we have seizures. If he’s having memory issues now it’s not his fault. Continuous seizures shrink our brain and reduce our brain cells. The reduction of brain cells affects our memory. I dealt with that as a child when my seizures started and I still memory issues today as I continue to have seizures in my 40’s.
2017
I got in a car accident