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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

One thing I wish I wasn’t struggling with so much is sluggishness and another is fatigue in my body. They both take a told on me at times.

A MyEpilepsyTeam Member asked a question 💭
Hayes, VA
June 22
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Answer Summary

Members connected over the shared struggle of fatigue and sluggishness, especially how epilepsy, fibromyalgia, spinal issues, and medications... Read more

Members connected over the shared struggle of fatigue and sluggishness, especially how epilepsy, fibromyalgia, spinal issues, and medications can drain energy and make daily life harder. Several members shared coping strategies like napping daily, pacing themselves before exhaustion sets in, and paying attention to weather changes as a fatigue trigger. A recurring theme was the importance of advocating for yourself with doctors, with many encouraging one member to switch neurologists after years of feeling dismissed and unheard.

A MyEpilepsyTeam Member

I'm on the max with my epilepsy medicine my Dr is now having me caring a nayzalam nasil spray because I have Refractory epilepsy and medication slows down the seizures never going to be able to stop them.. it's frustrating to be living with 54 years of my life now I'm a candidate for the RNS implement so I'm waiting for my nurse navigator to be contacting me about my options with the RNS implement

June 25
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member,
I still think you ought to go to a Dr. to find out for sure. I am sorry you've been going through such, but wouldn't you even like to know by seeing some1 for sure what it has been? Just speaking in concern from how you've been feeling for some time.

June 22
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member,
Thank you, I've felt that way through the years of seeing Dr.s Thankfully I've had some good and bad 1's. If they were bad, after giving them a chance and they weren't good. I never hesitated to change. I wish you the same on you having a Good Seizure-Free Day and Evening also.

June 25
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I Agree With You. Everyone Should Know To Visit Their Dr. If They Have Any Health Issues Or Concerns. You Have A Good Seizure-Free Day & Evening

June 25
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I am sorry you have gone through so much, but remember how many of us care for you

June 25

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