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June 19
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Answer Summary

Members responding to the question about mixing up words while speaking widely shared that this experience is very common among those living... Read more

Members responding to the question about mixing up words while speaking widely shared that this experience is very common among those living with epilepsy, with several connecting it to brain surgery, seizures, post-ictal states, or affected speech areas in the brain. One member shared that after a left temporal lobe removal, their specialist explained that word mix-ups and cognitive issues were expected, and that memory and strategy games helped with ongoing recovery. A recurring theme was that mistakes happen in both speaking and writing, and many found comfort in supportive workplaces and loved ones who understand and never make them feel embarrassed.

A MyEpilepsyTeam Member

I have issues with colours. I can see something is green and I call it something else. And only after pronouncing it I realise that it was wrong.

I also forget words - in my mother language!

June 20
A MyEpilepsyTeam Member

When I was working as a consultant I would be speaking in general or giving a presentation there would be times my words would fumble. I remember my epilepsy specialist saying to me this is quite common for someone that has had a left temporal lobe removal as that removal did effect the speech area along with cognitive issues.

I remember hearing my neurosurgeon who performed the TLE say to me there could be times when my words will get mixed up over time but slowly that type of issue will improve. In my case there were two things I needed to pay close attention to as the area effected was put through trauma so it needed much time for healing (a year in my case). Secondly, the area impacted where the speech is may not totally recover.

I was given recovery steps that could be taken like memory games and strategy game ideas. I still do both to this day as they help build the areas on a constant basis that had gotten the brain surgery.

Hope the above is of help.

June 19
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I also just keep the conversation going and the people that I work with understand why I do it and never make a negative comment or a joke. I have an amazing management team

June 20
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member,
What's funny on my part is I'd make the same remark a lot at times and a throwback from who I was talking to would say "I know you already told me". She does it now and we'll continue to talk.

June 20
A MyEpilepsyTeam Member

Yes, I know what you mean about struggling to find the words to explain what I want to say! I sometimes just forget what I want to say and how to word it easily? Unsure what part of my brain is struggling to do this basic thing? Keri

June 19

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