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Living with epilepsy has shaped so much of my life, and for a long time I wished I could find a fantasy hero who understood some of those struggles in the books I’ve read. Since I couldn’t find that story, I decided to write it. After a year of work, I’ve finished the first draft of a fantasy novel featuring a young woman with epilepsy as the main character. Her condition isn’t her entire identity, but it’s an important part of her journey. I’m beginning the editing process and eventually hope… read more
What an incredible and meaningful project! A fantasy hero living with epilepsy is something the epilepsy community has genuinely needed for a long time. The fact that her condition is part of her journey without defining her entirely already sounds like powerful, authentic storytelling. Based on what many people with Show Full Answer
Yeah at some point i would love to write my epilepsy story
I would LOVE to read something like this! I was a literature professor & am active in literary justice movements, especially for people with disabilities. This is really exciting ☺️
Yes. I think it is a good idea and yes, I would read it!
I studied/taught/read a lot of speculative fiction @ my wife is super into sci-fi tv & film. I had three VNS surgeries in the span of 4 years bc of multiple complications & I started really feeling overwhelmed by having this foreign object in me that had so much control over my mind, & by extension my life (months of increasing settings that caused significant pain & side effects, being able to feel it go off every few minutes & never being able to concentrate on/get lost in anything without literally being zapped back to attention). But one thing she did for me that was so helpful was tell me to think of myself of a cyborg - as a hybrid - as a kind of superhuman that we often see depicted in fantasy/sci-fi fiction. Even though it doesn’t always work - it did allow me to “imagine” (which is the work of fiction) a world in which people with disabilities could be seen as special or enhanced because of things like adaptive equipment & implants. I’m guessing you’re not writing about that, but I just wanted to share that one piece of a prism we came up with ☺️
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