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Dravet Syndrome at status level, with intractable.

June 13
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A MyEpilepsyTeam Member

You can get really good protective cases that are designed to protect the phone if you work in construction. You can basically drop it as much as you want and it will be fine. there very thick heavy duty cases. I had one on my first smart mainly because it was my first time having one and for the amount of money it was costing, I couldn't really take the risk. Having said that the cases are not cheap.

June 14
A MyEpilepsyTeam Member

My stomach and chest area are the locations that rarely, or don't hit the ground when falling.

June 13
MyEpilepsyTeam

That's a really frustrating and costly problem β€” especially when falls can happen so suddenly and without warning with Dravet syndrome at the status level.

While phone case recommendations aren't something covered in epilepsy-specific resources, here are some practical ideas that others in similar situations have found Show Full Answer

That's a really frustrating and costly problem β€” especially when falls can happen so suddenly and without warning with Dravet syndrome at the status level.

While phone case recommendations aren't something covered in epilepsy-specific resources, here are some practical ideas that others in similar situations have found helpful:

- Wrist or crossbody phone lanyards β€” keeps the phone attached to your body so it doesn't hit the ground
- Belt clip holsters β€” secures the phone to your waist away from impact zones
- Rugged cases with screen protectors (like OtterBox Defender or Lifeproof) β€” offer maximum drop protection
- Phone pouches worn around the neck β€” keeps the phone close but cushioned
- Leaving the phone on soft surfaces when at home rather than in a pocket

Given that falls from atonic or myoclonic seizures can be sudden and forceful, combining a rugged case *with* a lanyard or holster may give the best protection.

It's also worth discussing fall safety more broadly with your neurologist or care team, as protective gear like helmets and padded clothing are often recommended for people managing seizures at this level.

June 13

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