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I dont really know how to explain but its like your body is telling you "Hey, be careful, youre going to have a seizure today". Its usually like right when I wake up. Its a weird sensation.

June 9
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Answer Summary

Members connected over the experience of waking up with a strong sense that a seizure was coming that day, with many confirming this feeling... Read more

Members connected over the experience of waking up with a strong sense that a seizure was coming that day, with many confirming this feeling is very real and something they have learned to take seriously. Several members shared how they responded to these warning signs by staying calm, avoiding driving, and adjusting their plans, with one member sharing a difficult lesson learned after ignoring the feeling and having a seizure behind the wheel. A recurring theme was finding a positive side to these early warnings, as they give people a chance to make safer choices, and members encouraged each other to have faith and focus on small wins like staying seizure-free.

A MyEpilepsyTeam Member

I haven't had a seizure in 8 year on June 15th which is Monday!

June 10
A MyEpilepsyTeam Member

I had several days when I felt something was going to happen. Fortunately, I would do my best to stay calm all day and most of the time nothing happened.

June 9
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
When I wake up everyday I feel like it’s going to be another bad day. Not exactly seizure wise but knowing it’s going to be another depressing worthless day

June 9
MyEpilepsyTeam

What you're describing sounds very much like it could be an aura — and you're definitely not alone in experiencing this. An aura is actually considered a type of focal aware seizure, and it can act as a warning signal before a bigger seizure occurs. These warning sensations can feel different for everyone, but common ones Show Full Answer

What you're describing sounds very much like it could be an aura — and you're definitely not alone in experiencing this. An aura is actually considered a type of focal aware seizure, and it can act as a warning signal before a bigger seizure occurs. These warning sensations can feel different for everyone, but common ones include:

- A rising or uneasy feeling in the stomach
- Sudden unexplained fear or dread
- Feeling "spaced out" or disconnected
- A sense of déjà vu
- Nausea

The fact that it happens right when you wake up is really worth paying attention to and mentioning to your doctor. If you do get this feeling, try to use that window of time to get somewhere safe — lying down, moving away from anything that could cause injury, and letting someone nearby know what's happening can all help reduce risk.

It's a good idea to keep a journal of when these sensations occur and what they feel like, so your care team can get a clearer picture of what's going on.

June 9
A MyEpilepsyTeam Member

As an epileptic, you have to take all the little differences you have compared to others living with such. And look at the positive side. Now I know what it’s like to wake up instantly knowing it’s gonna be seizure day. That’s a little difference you may have compared to others facing epilepsy. But what in the world could be the positive side of waking up to such?
It gives you a hint, on what you should do and definitely should not even consider. I woke up one day while attending college. And I knew it was gonna be a seizure day. I had a driver’s license at the time and immediately told myself not to drive - of course. But one day I decided to make a quick run and I paid for it. And lucky how it all went in the end. But after depositing my paycheck I was almost home when that seizure hit me. I woke up in the hospital, knowing instantly I’d be losing my license.
So the good part of waking up to that feeling one day is knowing the little changes you have to make compared to all the others. And you better keep to those changes or you may end up paying for it. Definitely a positive to such.

June 15

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