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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
June 1
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A MyEpilepsyTeam Member

Every so often , after I had my seizure my hands will shake, like I’m having a nicotine fit. Other times my heart rate goes up as if I just finished a race

June 2
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
My eye muscles used to twitch all of the time. It was caused by the medication I was taking for seizures which was Lyrica.

June 2 (edited)
A MyEpilepsyTeam Member

my right hand twitches the most. my right eye and lip twitch sometimes. when i lay down my right side jerks a few times

June 2
MyEpilepsyTeam

What you're describing does sound like it could be connected to epilepsy — and you're definitely not alone in experiencing this!

The jerking during sleep could be nocturnal seizures. These can disrupt sleep without you fully realizing what's happening, and you might wake up feeling exhausted as a result. The hand twitching Show Full Answer

What you're describing does sound like it could be connected to epilepsy — and you're definitely not alone in experiencing this!

The jerking during sleep could be nocturnal seizures. These can disrupt sleep without you fully realizing what's happening, and you might wake up feeling exhausted as a result. The hand twitching while texting or using your hands sounds like it could be myoclonic seizures. These are brief, involuntary jerking movements that affect the arms or hands, and they often happen shortly after waking up. They can be so quick that they're sometimes mistaken for just being clumsy!

Here's a quick summary of what these might look like:

- Nocturnal seizures — jerking or twitching during sleep, often disrupting rest
- Myoclonic seizures — rapid, brief muscle jerks in the arms or hands during everyday activities

It's really important to bring both of these up with your neurologist or epilepsy specialist. Tracking when they happen, how often, and what you were doing can be really helpful information for your doctor.

June 1

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