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time . You’d never think how exhausting it can be at first but it is . This week alone I had three mornings I was up by 3:30 to leave by 4:30 to be at work by 5 . Plus living with the conditions of both hydrocephalus and epilepsy has its challenges trying to get myself moving in the mornings. It’s a hand full at times.
Answer Summary
Members rallied around someone returning to work while managing both hydrocephalus and epilepsy, sharing how physically and mentally demanding... Read more
Hi Quinn, please take care and follow the guidance of suitably qualified
medical professionals (i.e., those with knowledge of your epilepsy/health
needs), particularly with you taking on work. Have suitably qualified
medical professionals monitor you closely. Don't overdo it. Know your
limitations - discuss your needs with your employer.
Regards
Richard
I can agree with the mornings. Every morning I feel weak and more prone to having a seizure. They told me at work to not go if I’m not feeling good but I feel like that every morning.
@A MyEpilepsyTeam Member Do the other drs and specialists you see take note of the medications your on? I only ask because that's the only reason I had the Topamax issue looked in to. I didn't even think it was that big of a issue then I needed to go to get a eye test as part of a driving medical when I was first going for my license then next minute it blow up to me seeing an eye specialist for the next two years.
Jak994, i’ve tried to get a few things done with my current neurologist, and he just beats around the bush with everything anymore. I really don’t have confidence in him whatsoever and like I was telling Lori, you may have seen my comment my full intention when I see the nurse practitioner next month on the ninth I am going to request or ask her about a couple of doctors that are in that practice if there are any better than what I’ve got now. And I’ll tell her why I’m looking and I’m sure she’ll probably agree that. Yeah I need to do exactly that..
@A MyEpilepsyTeam Member The crazy thing about this is I asked this to different drs, a few different Neurologists and a Epilepsy Nurse and not one could really give me a straight yes or no answer. The best I got was yes you could go back but it would most likely be limited hrs and I most likely couldn't do what I was doing. The most annoying thing was they could never just say that they would always explain it in some annoying complicated way.
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